I see my friends as an integral part of fueling the drive I have to face the tribulations of Duchenne muscular dystrophy (DMD).
Children with cystic fibrosis are at relatively low risk of serious complications from COVID-19, a study sponsored by the Cystic Fibrosis Foundation found.
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Albert Faro, MD, VP for clinical affairs at the Cystic Fibrosis Foundation (CFF).
As the mother of a child with Alagille syndrome (ALGS), being the primary caretaker became overwhelming quickly.
We explore the various psychosocial needs of children with Pompe disease and discuss how we can better address those needs.
Having a disease like Duchenne muscular dystrophy (DMD) made just searching for a therapist I was comfortable speaking with another quandary.
Due to the complex and unpredictable nature of multiple sclerosis (MS), health care providers should address the psychological and emotional needs of their patients with MS, according to a study published in the Journal of Neurology. The emotional issues that patients with MS experience are often overlooked, according to a survey of over 3000 MS…
Being diagnosed with gastrointestinal stromal tumor (GIST) cancer can be challenging for many reasons. One of those being it is an “invisible” illness. When people hear “cancer,” they think of a bald, skinny, sick, helpless person, which in many cases is far from what it actually looks like. Many of my cancer friends actually gained…