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Test Your Knowledge About Rare Disease Facts and Statistics

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According to the National Organization for Rare Disorders (NORD), which of the following statements about rare disease facts and statistics are correct? Select one of the options for each question, then submit your answers to see your score and the average score for everyone who has taken the quiz. Read more about NORD. Reference Rare…

ANCA Quizzes, CCA Podcasts, CCA Quizzes, DLBCL Podcasts, DLBCL Quizzes, IPF Podcasts, IPF Quizzes, PAH Podcasts, PAH Quizzes, Podcasts, Quizzes, SM Podcasts, SM Quizzes, WD Podcasts, WD Quizzes

Test Your Knowledge About FDA Support for Rare Diseases

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Which of the following statements about US Food and Drug Administration (FDA) support for rare diseases are correct? Select one of the options for each question, then submit your answers to see your score and the average score for everyone who has taken the quiz. Read more about rare diseases at the FDA. Reference Rare…

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DLBCL Podcasts, hATTR Podcasts, HEM Podcasts, MG Podcasts, PAH Podcasts, PNH Podcasts, Podcasts, POMPE Podcasts, SM Podcasts, WD Podcasts

An Interview With PJ Brooks, PhD, on the Bespoke Gene Therapy Consortium

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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Philip J. Brooks, PhD, acting director of the Division of Rare Diseases Research Innovation at the National Institutes of Health’s National Center for Advancing Translational Sciences.

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Dr. Noah Greenspan Discusses the Diagnosis and Treatment of Patients With PAH

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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Noah Greenspan, DPT, founder of New York City’s Pulmonary Wellness & Rehabilitation Center. Dr. Greenspan, who also runs the nonprofit Pulmonary Wellness Foundation, talks about diagnosing and treating pulmonary arterial hypertension. Read the full article: The Prognosis for Patients With PAH Is Improving, but Early Detection…

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AATD Podcasts, ALGS Podcasts, GIST Podcasts, LAL-D Podcasts, LCFAOD Podcasts, MTC Podcasts, PAH Podcasts, Podcasts, POMPE Podcasts, SMA Podcasts

An Interview With Dr. Edward Neilan, Chief Medical Officer at NORD

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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Edward Neilan, MD, chief medical officer at the National Organization for Rare Disorders (NORD). This is a new position at NORD, which serves as the umbrella organization for some 330 disease-specific patient advocacy groups. NORD also sponsors the annual Rare Diseases and Orphan Products Breakthrough Summit,…

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    Continuing Medical Education (CME/CE) Courses

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