Rare Disease Advisor senior correspondent Larry Luxner interviews Ultragenyx CEO Dr. Emil Kakkis on the challenges of developing rare disease drugs.
Larry Luxner interviews Dr. Haggi Mazeh, an endocrine surgeon at Hebrew University’s Hadassah Medical Center in Jerusalem, Israel.
In this episode of the Rare Care podcast, Larry Luxner interviews surgical oncologist David Goldenberg, MD, FACS, about medullary thyroid carcinoma.
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Edward Neilan, MD, chief medical officer at the National Organization for Rare Disorders (NORD). This is a new position at NORD, which serves as the umbrella organization for some 330 disease-specific patient advocacy groups. NORD also sponsors the annual Rare Diseases and Orphan Products Breakthrough Summit,…