LCFAOD Podcasts

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An Interview With LCFAOD Patient Advocate Eileen Sullivan Baker

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Eileen Sullivan Baker, an Ohio attorney whose son, John, has long chain fatty acid oxidation disorder (LCFAOD). She has become an outspoken advocate for people with LCFAOD, in the absence of any formal patient advocacy organization. Read the full story here: Son’s Illness Drives Ohio Attorney…

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Perspectives on Long Chain Fatty Acid Oxidation Disorder With Dr. Jerry Vockley

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jerry Vockley, MD, PhD, chief of medical genetics at Pennsylvania’s UPMC Children’s Hospital of Pittsburgh. Dr. Vockley is also the founder of INFORM, the International Network for Fatty Acid Oxidation Research and Management, which will hold its next annual conference virtually October 27-28, 2021. Read the…

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Dr. Hagit Baris-Feldman Discusses Israel’s Burgeoning Role in Rare Disease Clinical Research

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Hagit Baris-Feldman, MD, director of the Genetics Institute at Israel’s Tel Aviv Sourasky Medical Center. Dr. Baris-Feldman, who also chairs the Israel Medical Genetics Association and is an associate professor at Tel Aviv University’s Sackler Faculty of Medicine, talks about why Israel has emerged as a…

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