Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Annie Kennedy, head of policy, advocacy, and patient engagement at the EveryLife Foundation for Rare Diseases. This Washington, DC-based nonprofit focuses on eliminating the diagnostic odyssey for rare diseases, promoting regulations that speed up therapeutic development, and improving access to approved rare-disease therapies.

Read the full story here: EveryLife Foundation Navigates Complex Issues to Advocate for Rare Disease Patients