HEM Podcasts

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Dr. Federico Stella on Using Nonrestrictive Diets After Stem Cell Transplantation

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Federico Stella, MD, on the controversial practice of severely restricting the diets of patients who have just undergone stem cell transplants. Read the full story here: Italian Hematologist Urges End to ‘Useless’ Restrictive Diets After Stem Cell Transplants

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An Interview With Darlene Shelton, Founder and President of Danny’s Dose Alliance

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Darlene Shelton, founder and president of Danny’s Dose Alliance, a Missouri-based nonprofit that seeks to ensure proper emergency medical care for all patients with hemophilia and other bleeding disorders. Read the full story here: Danny’s Dose Alliance Fights for Proper Emergency Care for Those With Bleeding…

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An Interview With Peter Saltonstall, President and CEO of NORD

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Peter Saltonstall, president and CEO of the National Organization for Rare Disorders (NORD), about the 40th anniversary of the landmark Orphan Drug Act. Read the full story here: At 40, Orphan Drug Act Enjoys Rare Bipartisan Support

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An Interview With PJ Brooks, PhD, on the Bespoke Gene Therapy Consortium

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Philip J. Brooks, PhD, acting director of the Division of Rare Diseases Research Innovation at the National Institutes of Health’s National Center for Advancing Translational Sciences.

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The Pursuit of Redosable Gene Therapies for Hemophilia With Dr. Doug Kerr

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Doug Kerr, MD, PhD, chief medical officer at Generation Bio in Cambridge, Massachusetts. The company is aggressively pursuing redosable gene therapies for hemophilia and other rare diseases. Read the full article: Generation Bio Pursues Redosable Gene Therapy for Hemophilia A

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