Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Laura McLinn, the Indiana mom of 12-year-old Jordan McLinn, who has Duchenne muscular dystrophy (DMD). Jordan, who became the unofficial poster boy of the “Right to Try” movement, has just completed 5 years in a clinical trial for a novel exon 53 skipping therapy.

Read the full story here: Poster Child for ‘Right to Try’ Movement Marks 5 Years on Novel DMD Treatment