An Interview With Marissa Penrod, Founder of DMD Nonprofit Group Team Joseph
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Marissa Penrod, founder of the Indiana-based nonprofit group Team Joseph.
DMD Podcasts
Solid Biosciences Founder Ilan Ganot Discusses His Quest for a Cure for DMD
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ilan Ganot, founder and CEO of Solid Biosciences, based in Cambridge, Massachusetts.
An Interview With DMD Expert and Gene Therapy Pioneer Dr. Jerry Mendell
Rare Disease Advisor senior correspondent Larry Luxner interviews DMD expert Jerry Mendell, MD, a professor at Nationwide Children’s Hospital in Columbus, Ohio.
Patient Advocate Laura McLinn Discusses Her Son’s Journey With DMD
Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Laura McLinn, the Indiana mom of 12-year-old Jordan McLinn, who has Duchenne muscular dystrophy (DMD). Jordan, who became the unofficial poster boy of the “Right to Try” movement, has just completed 5 years in a clinical trial for a novel exon 53 skipping therapy. Read…
Jay Griffin Discusses His Struggles Getting Treatment for His Son With DMD
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jay Griffin, a North Carolina father of a boy with Duchenne muscular dystrophy.
Dr. Courtney Young Discusses Her Company’s Approach to Treating DMD
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Courtney Young, PhD, founder and CEO of MyoGene Bio, based in San Diego, California.
An Interview With Muscular Dystrophy Association President Donald S. Wood
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donald S. Wood, PhD, president and CEO of the Muscular Dystrophy Association (MDA).
Dr. Eric Olson Discusses the Use of Gene Therapy in the Treatment of DMD
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Eric Olson, PhD, chief scientific advisor at Vertex Pharmaceuticals and founding chair of the molecular biology department at the University of Texas-Southwestern Medical Center. Dr. Olson is an expert on Duchenne muscular dystrophy and CRISPR gene editing technology. Read the full article: CureDuchenne to Highlight Latest…
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