CF Podcasts Archives

An Interview With Abigail Jenkins, President and CEO of Gamida Cell

January 25, 2023

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Abigail Jenkins, president and CEO of Gamida Cell, on the company’s development of omidubicel as an alternative to umbilical cord blood in stem cell transplants for myelofibrosis and other diseases. Read the full story here: Omidubicel Shows Promise as Replacement for Umbilical Cord Blood in Stem…

CAD Podcasts, CCA Podcasts, CF Podcasts, HAE Podcasts, HEM Podcasts, LAL-D Podcasts, LCFAOD Podcasts, Podcasts, POMPE Podcasts

An Interview With Peter Saltonstall, President and CEO of NORD

January 18, 2023

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Peter Saltonstall, president and CEO of the National Organization for Rare Disorders (NORD), about the 40th anniversary of the landmark Orphan Drug Act. Read the full story here: At 40, Orphan Drug Act Enjoys Rare Bipartisan Support

CF News Briefs, CF Podcasts, Podcasts

An Interview With Dr. Martin Mense of the Cystic Fibrosis Foundation

November 18, 2022

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Martin Mense, PhD, senior vice president of drug discovery at the Cystic Fibrosis Foundation (CFF), and head of the CFF’s Therapeutics Lab in Lexington, Massachusetts. Read the full story here: CFF and Industry Researchers Team Up to Unlock Genetic Solutions to Treating CF

CF Podcasts, CF Quizzes, Quizzes

Test Your Knowledge About the Diagnosis of Cystic Fibrosis

August 31, 2022

Which statements below about the diagnosis of cystic fibrosis (CF) are correct? Select a response to each question, then submit your answer to see your score and the average score for everyone who has taken the quiz. Read more about CF diagnosis.

CF Podcasts, CF Quizzes

Test Your Knowledge About Complications of Cystic Fibrosis

August 10, 2022

Which statement below about the complications of cystic fibrosis (CF) is correct? Select a response to the question, then submit your answer to see your score and the average score for everyone who has taken the quiz. Read more about CF complications here.

CF News Briefs, CF Podcasts, Podcasts

An Interview With Rare Disease Patient and Motivational Speaker Justin Skeesuck

July 10, 2022

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Justin Skeesuck, who crossed Spain’s 500-mile Camino de Santiago in a wheelchair.

AATD Podcasts, CF Podcasts, IPF News Briefs, IPF Podcasts, PAH News Briefs, PAH Podcasts

An Interview With Josh Disbrow, CEO of Aytu BioPharma

May 26, 2022

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Josh Disbrow, CEO of Colorado-based Aytu BioPharma.

CF News Briefs, CF Podcasts, Podcasts

An Interview With Cystic Fibrosis Foundation VP Albert Faro

By

Larry Luxner

March 22, 2022

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Albert Faro, MD, VP for clinical affairs at the Cystic Fibrosis Foundation (CFF).

CF Podcasts

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