CCA Podcasts

Test Your Knowledge About FDA Support for Rare Diseases

Which of the following statements about US Food and Drug Administration (FDA) support for rare diseases are correct? Select one of the options for each question, then submit your answers to see your score and the average score for everyone who has taken the quiz. Read more about rare diseases at the FDA. Reference Rare…

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An Interview With Peter Saltonstall, President and CEO of NORD

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Peter Saltonstall, president and CEO of the National Organization for Rare Disorders (NORD), about the 40th anniversary of the landmark Orphan Drug Act. Read the full story here: At 40, Orphan Drug Act Enjoys Rare Bipartisan Support

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An Interview With the Cholangiocarcinoma Foundation Veterans Project’s Director

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lourdes Rocha-Nussbaum, director of the Cholangiocarcinoma Foundation’s Veterans Project. This program explores the relatively high incidence of bile duct cancer among Vietnam War veterans and care options for such patients. Read the full story here: Vietnam Vets Face Higher Risk of Cholangiocarcinoma, Likely Due to Wartime…

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An Interview With Dr. Aiwu Ruth He of MedStar Georgetown University Hospital

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Aiwu Ruth He, MD, PhD, an associate professor of medicine at MedStar Georgetown University Hospital in Washington, DC, and one of the principal investigators of the TOPAZ-1 clinical trial. Read the full story: Cholangiocarcinoma Foundation Hails FDA Approval of Durvalumab as a Milestone

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