An Interview With Josh Disbrow, CEO of Aytu BioPharma
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Josh Disbrow, CEO of Colorado-based Aytu BioPharma.
Podcasts
Solid Biosciences Founder Ilan Ganot Discusses His Quest for a Cure for DMD
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ilan Ganot, founder and CEO of Solid Biosciences, based in Cambridge, Massachusetts.
An Interview With DMD Expert and Gene Therapy Pioneer Dr. Jerry Mendell
Rare Disease Advisor senior correspondent Larry Luxner interviews DMD expert Jerry Mendell, MD, a professor at Nationwide Children’s Hospital in Columbus, Ohio.
Test Your Knowledge About the Differential Diagnosis of ALGS
Alagille syndrome (ALGS) is a rare genetic multiorgan disorder. Take our quick quiz on statements about the differential diagnosis of ALGS.
Dr. Henry Kaminski on the Difficulties of Treating Myasthenia Gravis
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Henry Kaminski, MD, on the difficulties of treating myasthenia gravis.
Patient Advocate Laura McLinn Discusses Her Son’s Journey With DMD
Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Laura McLinn, the Indiana mom of 12-year-old Jordan McLinn, who has Duchenne muscular dystrophy (DMD). Jordan, who became the unofficial poster boy of the “Right to Try” movement, has just completed 5 years in a clinical trial for a novel exon 53 skipping therapy. Read…
Test Your Knowledge About the Etiology of Pompe Disease
Pompe disease, also known as glycogen storage disease type 2, is an autosomal recessive disorder. Take our quick quiz on its etiology.
Dr. Anthony Feinstein on His New Book About the Neurobehavioral Consequences of MS
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews neuropsychiatrist Anthony Feinstein, PhD, a professor at the University of Toronto.
Jay Griffin Discusses His Struggles Getting Treatment for His Son With DMD
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jay Griffin, a North Carolina father of a boy with Duchenne muscular dystrophy.
Meridith O’Connor on Her Work Raising Awareness of Myasthenia Gravis
Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Meredith O’Connor about her efforts to raise awareness of myasthenia gravis.
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