The Innocence of Children Helps Make My SMA Journey Easier
Living with spinal muscular dystrophy (SMA) is wrought with constant emotional ups and downs.
SMA Columns
SMA Awareness Month Demonstrates How Much Progress Has Been Made
I rejoice now, living in an era when spinal muscular atrophy (SMA) has been gifted the privilege of a whole month (August) dedicated to awareness.
Finding the Good in Being a Rare Disease Patient
It’s easy to discuss and concentrate on the lack of experiences one misses out on while living with a rare disease such as spinal muscular atrophy (SMA).
How a High-Tech Coffee Mug Makes Life With SMA Easier
There are many things I prefer not to consume while living with spinal muscular atrophy (SMA), but coffee is not one of them.
Dental Care Can Be Another Challenge When Living With SMA
Count dental care among the issues that are amplified while living with spinal muscular atrophy (SMA).
SMA Stole My Lifelong Dream: Having and Raising a Child
As a woman with SMA, the part I struggle with is accepting I have been cheated of the opportunity to carry a life inside me.
Routine Is an Essential Part of Managing SMA
Living with spinal muscular atrophy (SMA), routine is something I greatly appreciate.
My Life With SMA: How and Why I Dread Bloodwork
I’m immensely grateful for the opportunity to receive medication for my rare disease, spinal muscular atrophy (SMA).
How Wheelchair Power Soccer Adds Vigor, Energy to a Rare Disease Patient’s Life
Finding a sport to watch that includes people who look like me, a Duchenne muscular dystrophy (DMD) patient, is difficult.
Is Water Therapy a Luxury or Essential for People With SMA?
Something I look forward to every summer is swimming. Being in a pool has many health benefits for people with spinal muscular atrophy (SMA).
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