Something I look forward to every summer is swimming. Being in a pool has many health benefits for people with spinal muscular atrophy (SMA).
As the years go by, I’m learning how living with spinal muscular atrophy (SMA) is an ongoing education.
When living with spinal muscular atrophy (SMA), Spring allergies can mimic the common cold and cause protracted health issues.
I find myself with new aches and pains as I blow out my candles each year of my life with spinal muscular atrophy (SMA).
If less generic equipment was handed out for those with rare disabilities, it would help reduce other unnecessary costs.
Prior to a change during my bout with COVID-19, my medication, Evrysdi® (risdiplam) for spinal muscular atrophy (SMA), was fully covered by my insurance.
A lot of people see the wheelchair and automatically assume we can not do anything or they feel sorry for people like us. I do not want anyone to feel sorry for me, because I do not feel sorry for myself.
I’m grateful to be able to voice the struggles I face and emphasize the importance of advocating for ourselves.