Here’s my Personal ‘Pride Scale’ for SMA
Spinal muscular atrophy (SMA) has always been a part of my identity, but it has only recently become a source of pride.
SMA Columns
Navigating My SMA Diagnosis and Progression
The diagnostic process for spinal muscular atrophy (SMA) has evolved dramatically over the last 30 years.
Making Healthcare Practices Accessible for People With SMA
Many people with spinal muscular atrophy (SMA) have spent their fair share of time in healthcare settings.
Remembering Alecia Maringola, a Powerful Voice for SMA and Other Rare Diseases
Courage. Compassion. Family. Faith. Speak with anyone who knew Alecia Maringola and you’ll hear those words repeatedly, and for good reason.
Despite Living With SMA, I Have Many Thanks to Offer
Living with a rare disease, such as spinal muscular atrophy (SMA), can at times cloud the perception of being thankful.
The Ways My “Fur Baby Companion” Helps Me Cope With SMA
There are many things I use to help me cope with living with my rare disease, spinal muscular atrophy (SMA).
In a Life With SMA, Familiar Routines Are Most Challenging
I have lived many years with spinal muscular atrophy (SMA), and every day reminds me how difficult it is to manage daily routines.
Bittersweet Fall Memories as I Age With Spinal Muscular Atrophy
I always had a heart for having fun, and I wasn’t going to allow spinal muscular atrophy (SMA) to steal my joy.
The Innocence of Children Helps Make My SMA Journey Easier
Living with spinal muscular dystrophy (SMA) is wrought with constant emotional ups and downs.
SMA Awareness Month Demonstrates How Much Progress Has Been Made
I rejoice now, living in an era when spinal muscular atrophy (SMA) has been gifted the privilege of a whole month (August) dedicated to awareness.
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