Holiday Cheer Much Harder for Rare Disease Patients
For me, suffering from systemic mastocytosis (SM), the holidays can be challenging on many levels.
SM Columns
Could My Liver Issues Be Tied to Cold Agglutinin Disease?
Cold agglutinin disease (CAD), a form of autoimmune hemolytic anemia, can wreak havoc on your organs.
My SM and the Long, Growing List of Activities I Can’t Do
Since my journey with systemic mastocytosis (SM) began, many facets of my life have been altered.
Tips for Managing Medication Soup With Systemic Mastocytosis
When my journey culminated with a diagnosis of systemic mastocytosis (SM), my symptoms had already become a big problem.
My Battle With COVID-19 as a Systemic Mastocytosis Patient
It is widely known that COVID-19 can impact everyone differently, but for systemic mastocytosis (SM) patients, the effects can be powerful.
Even After Diagnosis, Patients With Systemic Mastocytosis Are Poorly Understood
In the era of modern medicine, there are still many of us who fall through the cracks. Those with systemic mastocytosis are no strangers to this truth.
My Experience With the VA as a Rare Disease Patient
VA health care went a long way in diagnosing and treating my systemic mastocytosis (SM), but there has been some issues.
Let Me Count the Ways Anxiety Is Different for SM Patients
Living with systemic mastocytosis (SM) requires a unique set of tools to manage the anxiety this rare disease creates.
How My Journey With the Rare Disease of Systemic Mastocytosis Began
There were many confusing and frustrating steps along the path to my systemic mastocytosis diagnosis.
The Journey to My Diagnosis With Systemic Mastocytosis
After countless colonoscopies and multiple steroid treatments, biopsies determined I had abnormally large counts of white blood cells.
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