How My ‘Best Friends’ Helped Me Turn the Corner Battling Pompe
I have been living with Pompe disease for most of my adult life.
Pompe Columns
Being Rare and Balancing Normality With Everyone Else’s Standards
I have been diagnosed with Pompe disease, which is a disease that lacks the enzyme that breaks down the glycogen.
The Effects of Insomnia on Pompe Disease Explored
Even with Pompe Disease, my body learns to adapt.
Why the MDA Shamrock Is Nothing Short of Sensational
In the last 40-plus years, March has been a time of great significance for the Muscular Dystrophy Association (MDA).
Severe Migraines While Living With Pompe
Living with Pompe disease means I need to keep a watchful eye on any and all symptoms, such as migraines.
Pompe, Other Rare Disease Patients Need to Find a Shoulder to Lean on
Recently I have been contacted by a few individuals whose siblings or friends have just been diagnosed with Pompe.
Rare Disease Month Thoughts From a Pompe Fighter
When I tell people about my rare disease, Pompe, the first thing they ask is “can I catch it?”
Preparing for Surgery With Pompe Disease
Here’s the thing about having surgery when you have Pompe, your surgeon doesn’t necessarily know about your disease.
The Importance of Self-Care While Living With Pompe
Living with Pompe disease has always been a challenge to show your best.
My Path From a Pompe Diagnosis to Taking Control of My Wellbeing
I was first diagnosed in 2016 with Pompe disease, a rare disease that causes breakdown and weakness in my muscles.
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