I thought it was normal to want to get married and start a family, but I learned very fast that society doesn’t see that for us rare disease patients.
Pompe disease columnist Bruce Campbell discusses issues related to the long road from symptoms to diagnosis and the importance of nutritional practices.
Part 1 of 2: Neuromyelitis optica spectrum disorder (NMOSD) columnist Teaira Daniels sets the stage for how rare diseases turned her world upside down.
Once I figured out stress was causing huge reactions in my body, I started looking at ways to manage and gain control over the responses of my body.
I would like more medical services to experience having customers, clients, and patients with rare diseases.
Don’t assume I’m not mentally healthy because of my Pompe disease.
I am a firm believer in sharing some of my personal experiences since being diagnosed with Pompe disease.
Pompe disease columnist Bruce Campbell answers questions on the challenges before his diagnosis and how he took ownership of his health after it.