Finding Your Comfort Zones While Managing a Rare Disease
Being diagnosed with a chronic illness like neuromyelitis optica spectrum disorder (NMOSD) is life changing.
Being diagnosed with a chronic illness like neuromyelitis optica spectrum disorder (NMOSD) is life changing.
Since being diagnosed with neuromyelitis optical spectrum disorder (NMOSD), finding the strength to move forward is what defines my life.
Having a rare disease like neuromyelitis spectrum disorder (NMOSD) can make you feel hopeless at times.
You need and get basic medical coverage support from the government, but you pay a price that significantly limits the quality of life you could have.
Going to a major concert was quite the experience for me as a wheelchair-dependent person living with NMOSD.
Neuromyelitis optica spectrum disorder (NMOSD) columnist Teaira Daniels reflects on the loss of her daughter, Amariyah, who passed away from Pompe disease.
Persons living with NMOSD value physical therapy to manage the symptoms, but who determines what progress is?
A NMOSD patient offers advice to rare disease patients in wheelchairs planning to fly this summer.
Part 1 of 2: Neuromyelitis optica spectrum disorder (NMOSD) columnist Teaira Daniels sets the stage for how rare diseases turned her world upside down.
Columnist Teaira Daniels will provide valuable insights into living and learning from life with neuromyelitis optica spectrum disorder (NMOSD).