NMOSD Columns

NMOSD Columns, Patient Perspectives, Pompe Columns

Reflecting on the Passing of My Daughter at the Hands of Pompe Disease

August 11, 2022

Neuromyelitis optica spectrum disorder (NMOSD) columnist Teaira Daniels reflects on the loss of her daughter, Amariyah, who passed away from Pompe disease.

NMOSD Columns, Patient Perspectives

Changes in Physical Therapy Routines Can Slow, Even Stop Progress

Teaira Daniels, NMOSD Contributor

July 7, 2022

Persons living with NMOSD value physical therapy to manage the symptoms, but who determines what progress is?

NMOSD Columns, Patient Perspectives

The Complexities of Air Travel for NMOSD and Other Rare Disease Patients

Teaira Daniels, NMOSD Contributor

June 23, 2022

A NMOSD patient offers advice to rare disease patients in wheelchairs planning to fly this summer.

NMOSD Columns, Patient Perspectives, Pompe Columns

My Daughter’s Fatal Struggle With Pompe, Then My Diagnosis With NMOSD

Teaira Daniels, NMOSD Contributor

January 11, 2022

Part 1 of 2: Neuromyelitis optica spectrum disorder (NMOSD) columnist Teaira Daniels sets the stage for how rare diseases turned her world upside down.