Finding Your Comfort Zones While Managing a Rare Disease
Being diagnosed with a chronic illness like neuromyelitis optica spectrum disorder (NMOSD) is life changing.
NMOSD Columns
My Rare Disease Journey: Being Strong Is the Only Option
Since being diagnosed with neuromyelitis optical spectrum disorder (NMOSD), finding the strength to move forward is what defines my life.
To My Fellow Rare Disease Patients: Celebrate Small Victories
Having a rare disease like neuromyelitis spectrum disorder (NMOSD) can make you feel hopeless at times.
How the ‘System’ Works Against This Person Living With NMOSD
You need and get basic medical coverage support from the government, but you pay a price that significantly limits the quality of life you could have.
Attending a Stadium Concert as a Wheelchair-Dependent Person With NMOSD
Going to a major concert was quite the experience for me as a wheelchair-dependent person living with NMOSD.
Reflecting on the Passing of My Daughter at the Hands of Pompe Disease
Neuromyelitis optica spectrum disorder (NMOSD) columnist Teaira Daniels reflects on the loss of her daughter, Amariyah, who passed away from Pompe disease.
Changes in Physical Therapy Routines Can Slow, Even Stop Progress
Persons living with NMOSD value physical therapy to manage the symptoms, but who determines what progress is?
The Complexities of Air Travel for NMOSD and Other Rare Disease Patients
A NMOSD patient offers advice to rare disease patients in wheelchairs planning to fly this summer.
My Daughter’s Fatal Struggle With Pompe, Then My Diagnosis With NMOSD
Part 1 of 2: Neuromyelitis optica spectrum disorder (NMOSD) columnist Teaira Daniels sets the stage for how rare diseases turned her world upside down.
NMOSD: From Confusion to Diagnosis Then a Path Forward
Columnist Teaira Daniels will provide valuable insights into living and learning from life with neuromyelitis optica spectrum disorder (NMOSD).
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