When a Rare Disease Patient Visits Urgent Care
I have never had to do a full course of antibiotics in all the years I have had a severe case of myasthenia gravis (MG).
I have never had to do a full course of antibiotics in all the years I have had a severe case of myasthenia gravis (MG).
A ventilator is sometimes used by patients with generalized myasthenia gravis (MG) who have weak respiratory muscles.
Living with chronic illnesses such as myasthenia gravis (MG) brings new definitions for good and bad days.
June is myasthenia gravis (MG) awareness month, and I want to highlight some reasons why rare disease advocacy is so important.
I have leaned into my intellectual curiosity as my disease has become more severe over the years; it keeps me engaged with the world and mentally active.
Patients with myasthenia gravis, like me, still need telehealth care options.
This year the Orphan Drug Act turns 40, and as a patient with MG I have personally benefited from the rise in treatments for rare disease patients.
I started losing my mobility before I got a diagnosis of myasthenia gravis (MG).
With having a refractory form of myasthenia gravis (MG) and chronic respiratory failure, the thought of contracting COVID has been a constant source of stress.
In the last 40-plus years, March has been a time of great significance for the Muscular Dystrophy Association (MDA).