MG Columns Archives

MG Columns, Patient Perspectives

Considering Thymectomy Surgery for Myasthenia Gravis

By

Stefanie Shea-Akers, MG Contributor

September 19, 2022

Most myasthenia gravis (MG) patients will hear or read about thymectomy surgery not long after diagnosis.

MG Columns, Patient Perspectives

For This Patient With MG, Shared Decision Making Is a Game Changer

By

Stefanie Shea-Akers, MG Contributor

July 26, 2022

Recently my myasthenia gravis (MG) specialist said something that changed how I view my role as a patient and gave me more agency.

MG Columns, Patient Perspectives

Living With MG Is Especially Challenging During the Summer Months

By

Stefanie Shea-Akers, MG Contributor

July 12, 2022

Intense heat can be dangerous for myasthenia gravis (MG) patients, making their systems worse if not managed properly.

MG Columns, Patient Perspectives

For This MG Patient, Getting a Port Was a Game Changer

By

Stefanie Shea-Akers, MG Contributor

June 21, 2022

I was in my local hospital so often dealing with my myasthenia gravis (MG) that I was known for how difficult it was to get an IV in me.

MG Columns, Patient Perspectives

Myasthenia Gravis Awareness Month: Critical for Helping Patients Live Better Lives

By

Stefanie Shea-Akers, MG Contributor

June 14, 2022

June is Myasthenia Gravis (MG) Awareness Month. For patients with MG and other rare diseases, awareness is key.

MG Columns, Patient Perspectives

Strategies for Managing Fatigue in Myasthenia Gravis

By

Stefanie Shea-Akers, MG Contributor

May 24, 2022

I think it’s important for chronic illness patients to find ways to mentally and physically separate from the fatigue and discomfort they are experiencing.

MG Columns, Patient Perspectives

Fatigue and Muscle Weakness in People With MG Are Not the Same

By

Stefanie Shea-Akers, MG Contributor

May 17, 2022

I imagine any myasthenia gravis (MG) patient would describe fatigue as a constant or intermittent part of their disease, yet fatigue is often described in relation to muscle weakness in terms of MG symptoms. Fatigue is not included in the Myasthenia Gravis Activities of Daily Living, (MG-ADLs), but since it is such a common symptom…