MG Columns

MG Columns, Patient Perspectives

When a Rare Disease Patient Visits Urgent Care

By

Stefanie Shea-Akers, MG Contributor

Publish Date July 24, 2023

I have never had to do a full course of antibiotics in all the years I have had a severe case of myasthenia gravis (MG). 

MG Columns, Patient Perspectives

Using a Ventilator to Compensate for a Weak Diaphragm

By

Stefanie Shea-Akers, MG Contributor

Publish Date July 17, 2023

A ventilator is sometimes used by patients with generalized myasthenia gravis (MG) who have weak respiratory muscles.

MG Columns, Patient Perspectives

Anxiety and Stress are No Friends of MG

By

Stefanie Shea-Akers, MG Contributor

Publish Date June 28, 2023

Living with chronic illnesses such as myasthenia gravis (MG) brings new definitions for good and bad days.

MG Columns

Myasthenia Gravis Month Raises Essential Awareness

By

Stefanie Shea-Akers, MG Contributor

Publish Date June 6, 2023

June is myasthenia gravis (MG) awareness month, and I want to highlight some reasons why rare disease advocacy is so important.

MG Columns, Patient Perspectives

How My Academic Background Helps Me Cope With Myasthenia Gravis

By

Stefanie Shea-Akers, MG Contributor

Publish Date May 30, 2023

I have leaned into my intellectual curiosity as my disease has become more severe over the years; it keeps me engaged with the world and mentally active.

MG Columns, Patient Perspectives

Here’s Hoping Telehealth Survives After the Pandemic

By

Stefanie Shea-Akers, MG Contributor

Publish Date April 28, 2023

Patients with myasthenia gravis, like me, still need telehealth care options.

MG Columns, Patient Perspectives

Orphan Drug Act Plays Critical Role in Helping Patients With Rare Diseases

By

Stefanie Shea-Akers, MG Contributor

Publish Date April 17, 2023

This year the Orphan Drug Act turns 40, and as a patient with MG I have personally benefited from the rise in treatments for rare disease patients.

MG Columns, Patient Perspectives, Uncategorized

The Difference a Power Wheelchair Made for Me

By

Stefanie Shea-Akers, MG Contributor

Publish Date April 4, 2023

I started losing my mobility before I got a diagnosis of myasthenia gravis (MG).

MG Columns, Patient Perspectives

When COVID-19 Struck This Myasthenia Gravis Patient

By

Stefanie Shea-Akers, MG Contributor

Publish Date March 27, 2023

With having a refractory form of myasthenia gravis (MG) and chronic respiratory failure, the thought of contracting COVID has been a constant source of stress.

DMD Columns, MG Columns, MS Columns, Patient Perspectives, Pompe Columns

Why the MDA Shamrock Is Nothing Short of Sensational

By

Alan Hieber, DMD Contributor

Publish Date March 3, 2023

In the last 40-plus years, March has been a time of great significance for the Muscular Dystrophy Association (MDA).