A ventilator is sometimes used by patients with generalized myasthenia gravis (MG) who have weak respiratory muscles.
June is myasthenia gravis (MG) awareness month, and I want to highlight some reasons why rare disease advocacy is so important.
I have leaned into my intellectual curiosity as my disease has become more severe over the years; it keeps me engaged with the world and mentally active.
Patients with myasthenia gravis, like me, still need telehealth care options.
This year the Orphan Drug Act turns 40, and as a patient with MG I have personally benefited from the rise in treatments for rare disease patients.
With having a refractory form of myasthenia gravis (MG) and chronic respiratory failure, the thought of contracting COVID has been a constant source of stress.