LCFAOD Columns

coronavirus

HEM Columns, LAL-D Columns, LCFAOD Columns, Patient Perspectives, Pompe Columns

How COVID Variants Affect Pompe and Other Rare Disease Patients

By

Keyana Sullivan, Pompe Disease Contributor

December 15, 2021

COVID-19 began to worry me, but it wasn’t until it hit my city that it began to terrify me, especially as a Pompe disease patient.

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LAL-D Columns, LCFAOD Columns, Patient Perspectives, Pompe Columns

Rare Diseases and Poor Mental Health Are Not Cause and Effect

By

Keyana Sullivan, Pompe Disease Contributor

November 29, 2021

Don’t assume I’m not mentally healthy because of my Pompe disease.

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Pompe Patients Must Share Experiences to Help Guide Treatment