I see my friends as an integral part of fueling the drive I have to face the tribulations of Duchenne muscular dystrophy (DMD).
I can’t believe that, as a limb-girdle muscular dystrophy patient, I still have to worry about accessibility in 2022.
In this column, contributor AlanHieber shares his playlist that he feels encapsulates what iit is like to have Duchenne muscular dystrophy (DMD).
Living with limb-girdle muscular dystrophy (LGMD) with only one source of income a month is stressful.
My father pays close attention to the around-the-clock care that my disease, Duchenne muscular dystrophy (DMD), requires.
The number one way I combat my often depleted energy is by giving my body the rest it needs to function effectively.
A lot of people see the wheelchair and automatically assume we can not do anything or they feel sorry for people like us. I do not want anyone to feel sorry for me, because I do not feel sorry for myself.
The unique hindrances that patients and caregivers in the rare disease community encounter are given attention on Rare Disease Day.
Being diagnosed with limb-girdle muscular dystrophy (LGMD) at a very young age was confusing.