Yes, I’m Disabled, but I Can Do More Than Desk Work
It is hard for those of us with disabilities to be considered capable of work beyond sitting at a desk in our wheelchair in front of a computer.
DMD Columns
Siblings’ Bond Stays Strong Despite DMD
Growing up with a rare disease like Duchenne muscular dystrophy (DMD) was a lonely experience at times.
How Motion Pictures Provide an Escape From DMD
For me, films have always been a momentary escape from the clutches of Duchenne muscular dystrophy (DMD).
Dear Running: How You Have Improved My Life With DMD
The physically limiting nature of Duchenne muscular dystrophy (DMD) is something I compare, in a way, to being chained.
The Trials of Eating When You Have DMD
As Duchenne muscular dystrophy (DMD) advances, many patients develop difficulty swallowing and struggle to enjoy eating.
How Video Games Offer Me Stress Relief From DMD
Video games have played a key role in managing my Duchenne muscular dystrophy.
My Escape From the Daily Struggles of Muscular Dystrophy: Music
Music helps me forget how stressful it is at times living with limb-girdle muscular dystrophy (LGMD).
How Wheelchair Power Soccer Adds Vigor, Energy to a Rare Disease Patient’s Life
Finding a sport to watch that includes people who look like me, a Duchenne muscular dystrophy (DMD) patient, is difficult.
CureDuchenne Conference Underscores Role of Parents as Caregivers
The speakers at a CureDuchenne FUTURES conference session I took in were mothers of children and an adult with Duchenne muscular dystrophy (DMD).
CureDuchenne Conference Confirms What I Know, Adds More Insight Into a DMD Life
Three medical providers gave presentations on how to balance these factors with the lifestyles that surround Duchenne muscular dystrophy (DMD).
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