CF Columns

What My Cystic Fibrosis Care Team Does Right

June 6, 2022

The other day, I had a follow-up clinic visit for cystic fibrosis. In the waiting room for my pulmonary function tests, I noticed how aggravated I was.

CF Columns, Patient Perspectives

Where My Life With Cystic Fibrosis Began and Where It Leaves Me Now

Klyn Elsbury, CF Contributor

April 4, 2022

The goal for my life was tragically simple: I just wanted to celebrate my 21st birthday and then take my last breath.

CF Columns, DMD Columns, Patient Perspectives, Pompe Columns, SMA Columns

See Me, the Person, Not Me in My Wheelchair

Jakira Avery, MD Contributor

March 4, 2022

A lot of people see the wheelchair and automatically assume we can not do anything or they feel sorry for people like us. I do not want anyone to feel sorry for me, because I do not feel sorry for myself.

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CF Columns

What My Cystic Fibrosis Care Team Does Right

Where My Life With Cystic Fibrosis Began and Where It Leaves Me Now

See Me, the Person, Not Me in My Wheelchair

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