When it comes to my son, who lives with Alagille syndrome (ALGS), it is challenging for me to discipline him.
Once my son was diagnosed with Alagille syndrome (ALGS), we realized that my daughter’s genetic test was likely to confirm the JAG mutation for the disease.
When you have a child with ALGS it can be hard to take time away to recharge and not feel an overwhelming amount of guilt.
After my son was diagnosed with Alagille syndrome (ALGS), we realized how quickly the medical expenses piled up.
Since my son, Jackson, started experiencing alopecia totalis on top of his Alagille syndrome (ALGS), life has been a journey searching for answers.
When you have a child with a rare disease such as Alagille syndrome (ALGS), entering kindergarten has many different aspects and challenges.
Summertime comes with its challenges in trying to manage pruritus in individuals with Alagille syndrome (ALGS).
When my son Jackson was 4 months post-transplant, caused by the effects of Alagille syndrome (ALGS) on his liver, our family got hit with a stomach bug.
After my son went into surgery to receive his new liver due to the damage from Alagille syndrome, my husband and I tried our best to manage the anxiety.