Treating My Son’s Alopecia While He Is Living With ALGS
My son, Jackson, has Alagille syndrome (ALGS) and is 3 years post-liver transplant. More than a year ago, he was diagnosed with alopecia.
ALGS Columns
Trial and Error in Managing My Son’s ALGS and Chronic Itching
After months of dealing with my son’s uncontrollable itch from Alagille syndrome (ALGS), we finally found a solution.
Managing ALGS in My Family: Anxiety and Uncertainty, Test After Test
Recently my daughter who was diagnosed with ALGS at the age of 3 underwent her first baseline brain scan.
My Son’s ALGS: Constant Worries and the Occasional ER Visit
Recently, my son, Jackson, who has Alagille syndrome (ALGS) had a trip to the emergency room (ER).
A Mother on the Importance of Assembling the Right ALGS Care Team
When a family receives an Alagille syndrome (ALGS) diagnosis, it can be scary and confusing to navigate.
ALGS, Chronic Pruritus, and a Scared Little Girl
My daughter who is now 8 years old was diagnosed with Alagille syndrome (ALGS) when she was 3.
The ALGS Community Finds Solace in Organizations That Know Their Pain
Becoming part of the rare disease world, specifically (ALGS), is something me and my family never anticipated.
Anxiety, Fear, and Uncertainty on the Road to My Son’s Liver Transplant
I found reassurance in the fact that only 20% of ALGS patients ended up with transplants, but I never expected my son would be one of them.
The Challenges of Educating Family and Friends About My Son’s ALGS
Alagille syndrome (ALGS) is such a rare disease that it can be overwhelming upon diagnosis.
Virus Threats Mean Constant Monitoring of Symptoms in My Son’s Battle With ALGS
Stomach viruses can become challenging for those with rare diseases such as Alagille syndrome (ALGS).
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