Researchers reported that treatment logs can play a meaningful role in the home treatment regimen of patients with blood disorders such as hemophilia and should therefore be encouraged. The study is published in Haemophilia.

Because of the limited availability of healthcare facilities, many patients with bleeding disorders are trained to have their prophylactic treatments administered at home. Once a patient is deemed safe for home treatment, the patient is expected to document their treatments, as well as any breakthrough bleeding episodes. 

Treatment logs are a potent communication tool that allows physicians to make informed treatment decisions. In addition, they allow physicians to assess adherence and adverse drug reactions. 


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The authors of the study sought to develop interventions to increase treatment log completion by at least 20% over 2 years among patients with bleeding disorders. They initiated a quality improvement drive from 2019 to 2022 guided by principles grounded in the Information-Motivation-Behavioral Skills Model. 

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“The Information-Motivation-Behavioral Skills Model implies that well-informed people are not always well-motivated and that this is inversely true,” the authors of the study wrote. 

Among the initiatives developed by the research team was to ensure that patients were clearly informed about the purpose of their treatment regimen and its benefits. Targeted phone calls, letters, and social media posts were initiated to ensure that patients remained informed. The research team focused on motivating their patients by sending them certificates of completion, as well as initiating calls and letters encouraging them to fill in their treatment logs. 

At the end of this project’s 2-year study period, the research team was successful in increasing treatment log completion by 20%. In October 2019, around 50% of patients completed their treatment log; in January 2022, the figure rose to 70%. 

“Continued efforts to inform and educate [patients with bleeding disorders] on the importance of maintaining treatment logs as well as the continual need to assess for barriers to adherence are necessary in order to sustain our improvements,” the authors of the study wrote.

Reference

Littner L, Thomas E, Doyle J, et al. Improving bleeding disorder treatment log adherence: an application of the Information-Motivation-Behavioral Skills ModelHaemophilia. Published online November 29, 2022. doi:10.1111/hae.14701