The World Federation of Haemophilia (WFH) has recommended that all stakeholders prioritize global collaboration to improve access to safe care for patients with hemophilia (HEM) and other bleeding disorders, according to an article published in Haemophilia.
For almost 60 years, the WFH has worked with various groups to secure holistic care for patients living with hemophilia and other bleeding disorders. Today, it advocates for the interest of these patients in 147 countries.
“Through the process of developing its strategic framework, the WFH recently sought to clarify its intended impact over the next few years and to prioritize and/or re-imagine the ways in which the organization can achieve its goals,” the authors wrote.
This has led to the publication of the WFH Roadmap to 2025, which details changes and strategic priorities in caring for this specific patient population. The roadmap was created with the input of 200 stakeholders from 70 countries.
Read more about hemophilia etiology
The WFH advocates for increased collaboration between various stakeholders in order to enhance the identification and diagnosis of individuals with bleeding disorders and to advocate for safe and sustainable care. Stakeholders include global and regional governmental agencies, medical associations, patient advocacy groups, industry players, and others.
The WFH’s strategic priorities are to advocate for a redesign of WFH training and education programs to maximize impact, strengthen global advocacy work to improve access to care, drive innovation to increase the proportion of individuals identified and diagnosed with bleeding disorders, and align programs to ensure maximum effectiveness.
“The success of this plan will depend on active collaboration between the WFH, NMOs [national member organizations], healthcare providers and other stakeholders, including governments and the pharmaceutical companies that develop and supply life-saving therapeutic products,” they wrote.
Laliberté J, Coffin D, Haffar A, et al. Theory of change and strategic priorities of the world federation of haemophilia. Haemophilia. 2022;10.1111/hae.14673. doi:10.1111/hae.14673