The CureDuchenne FUTURES National Conference will be held in Orlando, Florida, and virtually from May 27, 2022, to May 29, 2022. FUTURES will focus on “Building Community” and feature presentations on various topics about the latest research in the field as well as emerging treatments for patients living with Duchenne muscular dystrophy (DMD).

“We’re looking forward to reconnecting with the Duchenne community, both in-person and virtually, to share valuable resources and help improve the lives of those affected by Duchenne,” Debra Miller, founder and chief executive officer of CureDuchenne, said in a press release.

“As an organization, we have made important progress in the last year and are eager to provide Duchenne families with the information, support, and community they need to live the best and longest life possible.”


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CureDuchenne is a global nonprofit organization that focuses on finding a cure for DMD. The conference will start with a keynote speech by 2 patients with DMD, Justin Skeesuck and Patrick Gray, who will talk about their 500-mile journey across Northern Spain in their wheelchairs.

“We’re so excited to be a part of this year’s FUTURES National Conference,” Skeesuck said. “Our story is a testament to the power of community and the importance of relationships as we face the struggles of life. We hope to inspire those affected by [DMD].”

The conference will include important information on therapeutic research and patient care. There will also be a gene therapy “brunch & learn” that will include information about efforts in gene therapy and gene editing for DMD and what is in the pipeline for the future.

The session will be moderated by Jeffrey Chamberlain, PhD, from the Institute of Stem Cell and Regenerative Medicine at the University of Washington in Seattle and will be attended by a panel of specialists in the field of DMD research. Registration for the conference is open and costs $100 per person, and attending the conference virtually is free. Patients with DMD and children up to 16 years of age can also attend free of charge.

Reference

2022 FUTURES national conference for the Duchenne community. News release. CureDuchenne; April 6, 2022.