People with rare diseases who live in the United States have a poor health-related quality of life and experience significant stigma, according to a study published in the Orphanet Journal of Rare Diseases. A rare disease in the United States can be defined as any disease in which the prevalence is less than 200,000 cases.…
Junction: Still's Disease
Senior correspondent Larry Luxner interviews Lisa Phelps Sarfaty, from the National Organization for Rare Disorders, ahead of Rare Disease Day 2022.
Authors of a case study reported severe adult-onset Still disease manifestations in a patient with long-term sequelae of COVID-19.
PAH is an under-diagnosed complication of adult-onset Still disease.
Researchers examined the efficacy and safety of tocilizumab in patients with adult-onset Still’s disease.