Latest News
Bone Mass Loss, Diffuse Bone Sclerosis Observed in Patients With SM
One-Third of Patients With Indolent SM Report High Symptom Burden
CCL23 Suggested as a Potentially Relevant Biomarker in Systemic Mastocytosis
Avapritinib Could Reduce Indolent Systemic Mastocytosis Disease Burden
Case Report: Delayed Diagnosis of SM in a Patient With Chronic Skin Rash
PIONEER Trial Suggests Avapritinib Ameliorates Indolent SM Skin Symptoms
Nonadvanced Systemic Mastocytosis Can Have Severe and Debilitating Effects
Case Presentation Details Cardiac Surgery Anaphylaxis in a Patient With SM
Analysis Finds High Incidence of Avapritinib-Related Adverse Events in Elderly Men
SM Clinical Trials
SM Insights
Evaluating the Off-Label Use of Omalizumab in Systemic Mastocytosis
A growing body of evidence suggests that omalizumab could be used to significantly alleviate symptoms associated with systemic mastocytosis.
The Challenges and Impact of Living With Systemic Mastocytosis
When clinicians speak about “health-related quality of life,” they are trying to quantify something that is quite unquantifiable; how can the grief upon receiving a life-altering diagnosis, or the burden of lifelong hospital visits, be justifiably measured? Nevertheless, efforts to understand the disease and treatment burden that a patient carries is a step in the…
Managing Systemic Mastocytosis in the Long Term
It is now more possible than ever for us to characterize the life experience of an individual with a chronic or incurable disease—understanding the complications that may arise along the way, when they may arise, and the best evidence-based methods to address them. In recent years, increased funding has flowed into research that stretches over…
Patient Perspectives
Holiday Cheer Much Harder for Rare Disease Patients
For me, suffering from systemic mastocytosis (SM), the holidays can be challenging on many levels.
Could My Liver Issues Be Tied to Cold Agglutinin Disease?
Cold agglutinin disease (CAD), a form of autoimmune hemolytic anemia, can wreak havoc on your organs.
My SM and the Long, Growing List of Activities I Can’t Do
Since my journey with systemic mastocytosis (SM) began, many facets of my life have been altered.
Tips for Managing Medication Soup With Systemic Mastocytosis
When my journey culminated with a diagnosis of systemic mastocytosis (SM), my symptoms had already become a big problem.
SM Features
Italian Hematologist Urges End to ‘Useless’ Restrictive Diets After Stem Cell Transplants
Hematologist Federico Stella, MD, says restrictive diets for patients in the hospital recovering from stem cell transplants are unnecessary.
Omidubicel Shows Promise as Replacement for Umbilical Cord Blood in Stem Cell Transplants
Gamida Cell is gearing up to begin sales of omidubicel from Israel to US hospitals for use in stem cell transplants, pending FDA approval of the therapy.
Ambitious NCATS Bespoke Gene Therapy Consortium Targets Ultrarare Diseases
The Bespoke Gene Therapy Consortium (BGTC) is an ambitious public-private partnership that aims to develop gene therapies for ultrarare diseases.
An Inspirational Feat: Crossing Spain’s 500-Mile Camino de Santiago by Wheelchair
When 2 friends set out along Spain’s 500-mile Camino de Santiago, they didn’t know how many people they’d inspire with 3 little words: “I’ll Push You.”
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