Systemic Mastocytosis (SM)

SM Insights

Psychological therapy

The Challenges and Impact of Living With Systemic Mastocytosis

When clinicians speak about “health-related quality of life,” they are trying to quantify something that is quite unquantifiable; how can the grief upon receiving a life-altering diagnosis, or the burden of lifelong hospital visits, be justifiably measured?   Nevertheless, efforts to understand the disease and treatment burden that a patient carries is a step in the…
computed tomography

Managing Systemic Mastocytosis in the Long Term

It is now more possible than ever for us to characterize the life experience of an individual with a chronic or incurable disease—understanding the complications that may arise along the way, when they may arise, and the best evidence-based methods to address them.  In recent years, increased funding has flowed into research that stretches over…

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Patient Perspectives

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SM Features

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