Latest News
Direct Oral Anticoagulants as an Alternative Treatment for SCD
Prophylactic Hydroxyurea Linked With Reduced Stroke Risk in SCD
Proposed Genome Editing Technology Aims to Transform SCD Treatment
Sleep Disturbances Affect Neurocognitive Function in SCD
Children Born to Women With SCD Face Increased Risk of ADHD and Obesity
ARMS-PCR Identifies Variants Associated With SCD Severity
FDA Grants Two Designations for Novel SCD Therapies Under Investigation
Malaria Linked With the Exacerbation of Sickle Cell Disease
Retention of Functional Mitochondria in RBCs May Lead to SCD Complications
SCD Clinical Trials
Insights
Are Sickle Cell Carriers at Higher Risk of Developing Health Complications?
We explore the controversy around whether sickle cell carriers are at a higher risk of developing health complications.
The Confluence of Challenges in Fighting Sickle Cell Disease in the Congo
In countries such as the Democratic Republic of Congo, the fight against sickle cell disease takes up significant healthcare resources.
The Vulnerability of Patients With Sickle Cell Disease During the COVID-19 Pandemic
The COVID-19 pandemic has brought about a subsection of medical literature exploring the course of various diseases during the viral outbreak.
Updates on the Management of Pregnant Women with Sickle Cell Disease
We review the most recent studies and guidelines on the management of pregnant women with sickle cell disease (SCD).
The Far-Reaching Impact of Innovative Clinical Trial Designs in Rare Disease
We examine the lasting impact of innovative clinical trial designs for rare diseases on other clinical experiments.
Patients With Sickle Cell Disease Report Devastating Impacts on Their Well-Being
Two recently published studies detail the wide-reaching burden of sickle cell disease among patients of all ages.
SCD Features
L-Glutamine in Sickle Cell Disease: The Real-World Impact to Date
L-glutamine was approved in 2017 to treat acute complications in patients with sickle cell disease, but uptake of and adherence to it have been limited.
An Often Overlooked Disease Exiting the Shadows
Funding for sickle cell disease clinical trials and drug development has steadily increased and groundbreaking gene therapy research is being conducted.
Using Technology to Boost Ethnic, Geographic Diversity in Clinical Trials
Eliminating geographic and ethnic bias in clinical trials for rare diseases is the goal of Jeeva Informatics, says founder and CEO Harsha K. Rajasimha, PhD.
CORD Aims to Improve Diagnosis, Drug Access for Canada’s Rare Disease Patients
The Canadian Organization for Rare Disorders advocates for better diagnosis and drug access for Canada’s 3 million people with rare diseases.
Israel Emerges as Global Powerhouse in Rare Disease Research
When it comes to rare disorders, Israel—a New Jersey-sized nation of 9.3 million that’s made headlines this year for its highly successful coronavirus vaccination campaign—is clearly an emerging powerhouse.
Newborn Screening Saves Lives, Yet Raises Some Ethical Issues, Expert Says
Georgianne Arnold, MD, an expert on newborn screening, says the practice clearly saves lives, yet raises ethical concerns.
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