News
Parental Employment Hours May Predict Physical Activity Compliance in PWS
Case Report: Vagal Asystole in a Young Patient With Prader-Willi Syndrome
FDA Grants Rare Pediatric Disease Designation for ARD-101 in PWS
Phase 3 Study of Pitolisant for Patients With PWS to Be Launched in Late 2023
Researchers Discover Defects in Early Synaptic Formation in Prader-Willi Syndrome
Factors Contributing to Impaired Postural Stability in Adults With PWS
Serious Medical Events Found to Be Common in Patients With PWS
Enhancing Development of the Hypothalamus Could Help Treat PWS
Latest Clinical Trials
An Open-Label Study of Oral NNZ-2591 in Prader-Willi Syndrome (PWS-001)
Study to Evaluate Efficacy, Safety, and Tolerability of RGH-706 in Prader-Willi Syndrome
Biological Age Assessment in Adults With Prader-Willi Syndrome (ETABIOLPWS)
The Intervention of Obesity in Children With Prader-Willi Syndrome Using Prebiotics and Probiotics
Features & Insights
Multiple Clinical Trials Seek New Approach to Treating Prader-Willi Syndrome
Several investigational therapies are being evaluated for the treatment of Prader-Willi syndrome, a rare disease marked by persistent hyperphagia.
Weighing the Risks of Experimental Treatment Against the Burden of PWS
Caregivers of patients with Prader-Willi syndrome said they need new treatments so much that they are willing to accept the potential risks they may carry.
Experts Urge Rare Disease Screening for Everyone, Not Just Pregnant Women
The American College of Obstetricians and Gynecologists now recommends that all women—ideally before pregnancy—be screened for hemoglobinopathies.
Advocates Pushing for Safer, More Accessible Air Travel for People With Disabilities
Rare disease advocacy groups are lobbying Congress to amend regulations to let people with disabilities remain in their wheelchairs during flights.
As Pandemic Restrictions Continue to Ease, Rare Disease Patients Still Fear COVID-19
Three years after COVID-19 was declared a pandemic, rare disease patients still fear the contagion—and must deal with the fallout.
Recent PWS Studies
Conference Coverage
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