Latest News
NMOSD Associated With Worse Outcomes Than MOGAD in Latin America
Early Treatment May Be Needed for MS and NMOSD-Related Optic Neuritis
Risk of Relapse Found in Select Patients With NMOSD on Immunosuppressants
Misdiagnosis Is Common in NMOSD and Associated With Treatment Delay
Inebilizumab May Not Increase the Risk of COVID-19 in Patients With NMOSD
A Rituximab Gram May Be Enough for Maintenance Schedule in NMOSD and MS
Economic Burden Among Patients With NMOSD Explored
Higher Risk of NMOSD Reported in Black and Asian Patient Populations
Patients With NMOSD May Display Neuropsychological Impairment
A Case of Cutaneous Drug Reaction After Initiation of Eculizumab Therapy
NMOSD Clinical Trials
Insights
How NMOSD May Impact Pregnancy and Fertility
Studies have attempted to shed light on the risk factors associated with a pregnancy-related NMOSD attack.
The Emotional Response to a NMOSD Diagnosis Explored
Studies reveal that patients often describe feelings of shock, confusion, and sadness upon a diagnosis of NMOSD.
When NMOSD and Sjögren Syndrome Intersect
Scientists have observed that patients who have comorbidities such as Sjögren syndrome (SjS) have a more severe presentation of NMOSD.
NMOSD Treatment Impacted Amid the COVID-19 Pandemic
The early months of the COVID-19 pandemic were defined by one universal human attribute: fear. Specifically, fear of the unknown, the media reported the high number of global deaths from the pandemic on a daily basis, and insufficient research meant that the scientific community simply did not have enough information in the beginning on how…
Exploring the Parental Burden of Care of Children With Rare Diseases
The parental burden of care of children with rare diseases is considerable and deserves due attention and support.
B Cells as a Disease Driver and Therapeutic Target in NMOSD
B cells regulate immune function; however, in NMOSD, they also play a role in driving crucial pathophysiological processes.
Patient Perspectives
To My Fellow Rare Disease Patients: Celebrate Small Victories
Having a rare disease like neuromyelitis spectrum disorder (NMOSD) can make you feel hopeless at times.
How the ‘System’ Works Against This Person Living With NMOSD
You need and get basic medical coverage support from the government, but you pay a price that significantly limits the quality of life you could have.
NMOSD Features
Omidubicel Shows Promise as Replacement for Umbilical Cord Blood in Stem Cell Transplants
Gamida Cell is gearing up to begin sales of omidubicel from Israel to US hospitals for use in stem cell transplants, pending FDA approval of the therapy.
Ambitious NCATS Bespoke Gene Therapy Consortium Targets Ultrarare Diseases
The Bespoke Gene Therapy Consortium (BGTC) is an ambitious public-private partnership that aims to develop gene therapies for ultrarare diseases.
International Sumaira Foundation Aims to Stop Frequent Misdiagnosis of NMOSD
Sumaira Ahmed, an advocate for patients with NMOSD, is featured in an episode of PBS-TV’s award-winning documentary series Medical Stories.
Boston-Based Neurologist Michael Levy Leads Research on Treating NMOSD
Michael Levy, MD, PhD, director of the Neuroimmunology and Neuro-Infectious Diseases Division of Massachusetts General Hospital, is an expert on NMOSD.
Rare Care Podcast
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