Latest MG News
People With Rare Diseases Report Facing Stigma, Poor Quality of Life
Phase 3 Myasthenia Gravis Trials Yield Positive Results for 2 Potential Therapies
Quality of Life Questionnaire Recommended When Treating Myasthenia Gravis
Case Studies Suggest Etiopathogenetic Link Between NMOSD and Myasthenia Gravis
Benefits of COVID-19 Vaccine Outweigh the Risks in MG, Study Suggests
Lymphoplasma Exchange Effective in Some Myasthenia Gravis Cases
Dr. Henry Kaminski on the Difficulties of Treating Myasthenia Gravis
Preoperative Anti-MG Drugs Associated With Severe Respiratory Failure
FDA Approves Ravulizumab-cwvz for Adults With Myasthenia Gravis
MG Clinical Trials
Features & Insights
What We Can Learn From a Case Study of Myasthenia Gravis Occurring With COVID-19
During the height of the COVID-19 pandemic, physicians reported treating new cases of myasthenia gravis post-infection.
Variability of Myasthenia Gravis Symptoms Makes Diagnosing, Treating the Disease Difficult
Myasthenia gravis (MG) is a complicated disease that takes an average of 2 years and 3 to 4 physicians to diagnose, expert Henry Kaminski, MD, said.
Exploring the Lived Experiences of Patients With Myasthenia Gravis
Picture for a moment living with this set of symptoms on a daily basis—how would you like your physician to respond?
Patient Advocate Meridith O’Connor Helps Others Navigate the Myasthenia Gravis Journey
Meridith O’Connor, who has myasthenia gravis, founded The Merit Option to help other patients manage life with the disease.
Lessons Learned: Myasthenia Gravis Care During the COVID-19 Pandemic
Researchers proposed a 4-item test to detect signs of bulbar and respiratory involvement when treating patients with myasthenia gravis remotely.
The Far-Reaching Impact of Innovative Clinical Trial Designs in Rare Disease
We examine the lasting impact of innovative clinical trial designs for rare diseases on other clinical experiments.
Rare Disease Day 2022: Health Care Policy and Protections Still Lacking in Many States
NORD and other rare disease organizations around the world will celebrate Rare Disease Day on February 28, 2022, with most events being held virtually.
Using Technology to Boost Ethnic, Geographic Diversity in Clinical Trials
Eliminating geographic and ethnic bias in clinical trials for rare diseases is the goal of Jeeva Informatics, says founder and CEO Harsha K. Rajasimha, PhD.
Israel Emerges as Global Powerhouse in Rare Disease Research
When it comes to rare disorders, Israel—a New Jersey-sized nation of 9.3 million that’s made headlines this year for its highly successful coronavirus vaccination campaign—is clearly an emerging powerhouse.
NORD Recognizes Progress in Fight Against Rare Disease With 2021 Rare Impact Awards
Under COVID-19’s lingering shadow, the National Organization of Rare Disorders (NORD) has presented its 2021 Rare Impact Awards to 24 pharmaceutical firms, researchers, politicians, and nonprofit groups for their efforts over the past year on behalf of patients with such illnesses.
Patient Perspectives
Strategies for Managing Fatigue in Myasthenia Gravis
I think it’s important for chronic illness patients to find ways to mentally and physically separate from the fatigue and discomfort they are experiencing.
Fatigue and Muscle Weakness in People With MG Are Not the Same
I imagine any myasthenia gravis (MG) patient would describe fatigue as a constant or intermittent part of their disease, yet fatigue is often described in relation to muscle weakness in terms of MG symptoms. Fatigue is not included in the Myasthenia Gravis Activities of Daily Living, (MG-ADLs), but since it is such a common symptom…
This MG Patient Values Celebrating Small and Large Victories
I recently achieved a big milestone in my journey of stabilizing my myasthenia gravis (MG): I made it an entire year without a myasthenic crisis.
Rare Care Podcast
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