Idiopathic Pulmonary Fibrosis (IPF)

Features

Hagit Baris-Feldman

Israel Emerges as Global Powerhouse in Rare Disease Research

TEL AVIV, Israel — On the 6th floor of Schneider Children’s Hospital in the Tel Aviv suburb of Petah Tikva, 30 children with Alagille syndrome and 2 with lysosomal acid lipase deficiency (LAL-D) receive specialized treatment from a trio of pediatric hepatologists. Across town, at Sheba Medical Center’s Edmond and Lily Safra Children’s Hospital, pediatric…

Treating IPF Patients in the Age of COVID-19

NEW YORK, New York — Noah Greenspan, DPT, says the pulmonary fibrosis (PF) patients and others who had been coming to his Pulmonary Wellness and Rehabilitation Center until he closed it in March 2020 in the wake of the COVID-19 pandemic were among “the oldest, sickest, most complex patients in the book.”  Since then, the…
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NORD Recognizes Progress in Fight Against Rare Disease With 2021 Rare Impact Awards

Under COVID-19’s lingering shadow, the National Organization of Rare Disorders (NORD) has presented its 2021 Rare Impact Awards to 24 pharmaceutical firms, researchers, politicians, and nonprofit groups for their efforts over the past year on behalf of patients with such illnesses. The virtual ceremony was hosted by John Whyte, MD, MPH, chief medical officer at WebMD, with commentary…

IPF Clinical Insights

IPF complications

The Potential Roles of Extracellular Vesicles in AATD and IPF

Extracellular vesicles (EVs) have been implicated in the pathogenesis of a variety of chronic respiratory diseases, including alpha-1 antitrypsin deficiency (AATD) and idiopathic pulmonary fibrosis (IPF). Their role in disease progression makes them an interesting target for diagnostic and therapeutic interventions. The multiple potential functions of EVs in these diseases are discussed by Purghè et…

Rare Care Podcast

Diagnosing and Treating IPF: Insights From Noah Greenspan, DPT, founder of New York City’s Pulmonary Wellness & Rehabilitation Center.


IPF Meeting Coverage