Latest hATTR News
Vutrisiran Appears More Effective than Tafamidis in hATTR With Polyneuropathy
Case Study: Hypertrophic Cardiomyopathy Caused by hATTR
Select Policies May Interfere With Patient Access to Therapies
New Study to Evaluate Cardiac Effects of Patisiran in hATTR
Machine Learning a Potential Tool for Early Diagnosis of hATTR With Polyneuropathy
Patisiran May Improve PND Score and QoL in Patients with hATTR
Rare hATTR Variant Associated With Gastrointestinal Tract Amyloidosis
MRI With Nuclear Scintigraphy Useful in Diagnosing Cardiac Amyloidosis
Positive Data Released for Patisiran in Patients With hATTR
Clinical Trials
Insights
Assessing the Role of Occupational Therapy in hATTR
Occupational therapy can alleviate many of the physical symptoms of hATTR, but do patients have equitable access to these services?
Diagnosing and Treating hATTR With Polyneuropathy
It is important that physicians use the right tools to treat hATTR with polyneuropathy, and closely monitor disease progression.
Occupational Therapy Can Play a Central Role in the Treatment of hATTR
Studies indicate that patients with hereditary transthyretin amyloidosis are aware that occupational therapy can improve their lives.
Strategies for Diagnosing and Treating Hereditary Transthyretin Amyloidosis
The accurate diagnosis and multidisciplinary treatment of hereditary transthyretin amyloidosis are central to improving patients’ quality of life.
Treating Cardiac ATTR: Current Strategies and Challenges
Novel agents have been developed to treat cardiac ATTR, whereas the use of heart failure therapies as symptomatic treatment is limited.
Patient Perspective
Living With hATTR Has Made Me Self-Conscious
It really stings when the reality of my symptoms caused by living with hATTR become outwardly noticeable.
Rare Disease Day 2023: Cast an Even Brighter Light on hATTR
For this rare disease patient, it is reassuring to discover online groups and organizations that connect me with others who live with hATTR.
Living With hATTR Can Be a Financial Nightmare
Living with hereditary transthyretin amyloidosis (hATTR) has brought significant financial burdens to my world.
hATTR Features
Advocates Pushing for Safer, More Accessible Air Travel for People With Disabilities
Rare disease advocacy groups are lobbying Congress to amend regulations to let people with disabilities remain in their wheelchairs during flights.
ATTR Expert: Amyloid Cardiomyopathy an ‘Unrecognized Pandemic’ Among Black Men
Amyloidosis expert John L. Berk, MD, warns that a certain form of ATTR may affect up to half a million Black American males.
Italian Hematologist Urges End to ‘Useless’ Restrictive Diets After Stem Cell Transplants
Hematologist Federico Stella, MD, says restrictive diets for patients in the hospital recovering from stem cell transplants are unnecessary.
Omidubicel Shows Promise as Replacement for Umbilical Cord Blood in Stem Cell Transplants
Gamida Cell is gearing up to begin sales of omidubicel from Israel to US hospitals for use in stem cell transplants, pending FDA approval of the therapy.
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