Latest HAE News
Positive Results Announced for HAE Late-Stage Investigational Therapy
Genome Sequencing Tests May Improve Diagnosis of Rare Diseases
Phase 1 Data Support Sebetralstat Short-Term Prophylaxis in HAE
Case Study: Delayed, Drug-Induced Angioedema
First Patient Dosed With NTLA-2002 in HAE Phase 1/2 Study
HAE Prodromal Signs Often Predict Swelling, According to Study
PLAUR Splicing Pattern Not Different Between Patients With HAE and Controls
Study Reports Delayed Diagnosis and Underdiagnosing HAE in Latvia
Long-Term Prophylaxis With Berotralstat Reduces HAE Attack Rates
HAE Clinical Trials
Understanding Hereditary Angioedema and Associated Comorbidities
Patients diagnosed with hereditary angioedema often suffer from comorbidities that can seriously compromise quality of life.
Best Practices in Managing Pediatric Patients With HAE
Pediatric patients with hereditary angioedema should be provided with holistic care that improves their physical and psychosocial well-being.
Expert Considerations for Managing HAE During Pregnancy
Given the particularities of managing HAE during prepregnancy, pregnancy, delivery, and postpartum, experts share management considerations.
Understanding and Detecting the Tricky Presentation of Hereditary Angioedema
Patients with hereditary angioedema typically present with acute localized swelling at a particular area of their body.
Exploring the Parental Burden of Care of Children With Rare Diseases
The parental burden of care of children with rare diseases is considerable and deserves due attention and support.
Anxiety and Depression in Hereditary Angioedema
Patients diagnosed with hereditary angioedema often describe feelings of uncertainty, anxiety, and depression.
Examining the Burden of Undiagnosed Hereditary Angioedema
Undiagnosed or misdiagnosed hereditary angioedema exacts a heavy burden on patients due to missed opportunities for treatment.
Understanding Gastrointestinal Symptoms in Hereditary Angioedema
Although common, gastrointestinal symptoms in hereditary angioedema are often misdiagnosed, leading to unnecessary investigational procedures.
Extending Attack-Free Periods in Patients With Hereditary Angioedema
A chief goal of HAE therapy is to achieve long attack-free periods that allow patients to live their lives with a measure of certainty.
The Mental Toll of the COVID-19 Pandemic on Patients With Hereditary Angioedema
Research suggests mental health issues due to concerns about the COVID-19 pandemic can exacerbate symptoms of hereditary angioedema.
The Early Signs of My Hereditary Angioedema Were Missed for Years
In 2017, I caught a cold that triggered my first huge attack and would eventually lead to a diagnosis of hereditary angioedema (HAE).
For One Family, Prophylactic HAE Therapy Lanadelumab ‘Has Truly Been a Miracle’
The FDA has approved Takeda’s injectable therapy lanadelumab (Takhzyro®) to treat hereditary angioedema in children as young as 2 years old.
At 40, Orphan Drug Act Enjoys Rare Bipartisan Support
Rare disease advocates are marking the 40th anniversary of the landmark Orphan Drug Act, which has led to over 1100 approvals for new therapies.
Considerations for Treating Women With HAE: Lessons From a Puzzling Type 3 Case
There are a few considerations that physicians need to make when caring for female patients with HAE-C1INH type I or II or HAE-nl-C1INH.