Latest HAE News
3D Facial Analysis Technology Could Improve Diagnosis of HAE
Top FDA Official Touts ‘Promise of Gene Therapy’ at MDA Annual Conference
Long-Term Prophylaxis With C1-INH Could Help Reduce the Burden of HAE
Clinicians Face Particular Challenges When Treating HAE in Rural Areas
Study Illustrates Detrimental Impact of COVID-19 Pandemic on Patients With HAE
Patients With HAE in Japan Report Decreased Health-Related Quality of Life
FDA Accepts Investigational New Drug Application for Potential HAE Therapy
High Digit Ratio May Be Associated With Hereditary Angioedema Attack Frequency
Woman With Severe HAE-nC1 Successfully Treated With Lanadelumab
HAE Clinical Trials
Insights
Understanding and Detecting the Tricky Presentation of Hereditary Angioedema
Patients with hereditary angioedema typically present with acute localized swelling at a particular area of their body.
Exploring the Parental Burden of Care of Children With Rare Diseases
The parental burden of care of children with rare diseases is considerable and deserves due attention and support.
Anxiety and Depression in Hereditary Angioedema
Patients diagnosed with hereditary angioedema often describe feelings of uncertainty, anxiety, and depression.
Examining the Burden of Undiagnosed Hereditary Angioedema
Undiagnosed or misdiagnosed hereditary angioedema exacts a heavy burden on patients due to missed opportunities for treatment.
Understanding Gastrointestinal Symptoms in Hereditary Angioedema
Although common, gastrointestinal symptoms in hereditary angioedema are often misdiagnosed, leading to unnecessary investigational procedures.
Extending Attack-Free Periods in Patients With Hereditary Angioedema
A chief goal of HAE therapy is to achieve long attack-free periods that allow patients to live their lives with a measure of certainty.
The Mental Toll of the COVID-19 Pandemic on Patients With Hereditary Angioedema
Research suggests mental health issues due to concerns about the COVID-19 pandemic can exacerbate symptoms of hereditary angioedema.
Comparing the Perspectives of Patients and Clinicians on Hereditary Angioedema Care
It is vital that physicians and their patients are on the same page with regard to hereditary angioedema care.
The Pathophysiology and Clinical Manifestations of Hereditary Angioedema
Our understanding of the pathophysiological mechanisms underpinning hereditary angioedema has improved drastically over the last few years.
The Challenges of Diagnosing and Managing Hereditary Angioedema
The difficulty in diagnosing hereditary angioedema lies in the variability of its phenotype. An initial misdiagnosis is not uncommon.
Patient Perspectives
The Early Signs of My Hereditary Angioedema Were Missed for Years
In 2017, I caught a cold that triggered my first huge attack and would eventually lead to a diagnosis of hereditary angioedema (HAE).
Features
At 40, Orphan Drug Act Enjoys Rare Bipartisan Support
Rare disease advocates are marking the 40th anniversary of the landmark Orphan Drug Act, which has led to over 1100 approvals for new therapies.
Considerations for Treating Women With HAE: Lessons From a Puzzling Type 3 Case
There are a few considerations that physicians need to make when caring for female patients with HAE-C1INH type I or II or HAE-nl-C1INH.
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