Latest News
Study Finds Several Factors Influence Blood Loss in Hemophilia Knee Arthroplasty
Efmoroctocog Alfa Reduces FVIII Consumption in Hemophilia Trial
NSAID Use in Hemophilia Linked With Low Risk of Adverse Events
Study Shows High Polypharmacy in Older Patients With Hemophilia
New Algorithm Reduces CT Scans for Head Trauma in Pediatric Hemophilia
Outpatient Anticoagulation Management Services May Aid Hemophilia Treatment
Patient-Derived Tool Validates Hemarthrosis With Musculoskeletal Imaging
Befovacimab May Not Be Safe for Patients With Hemophilia
Increased DNA Methylation Linked With Unexplained Recurrent Hemophilia
Latest Clinical Trials
Insights
How Hemophilia Continues to Affect Patients’ Quality of Life
Questionnaires assessing the quality of life of patients with hemophilia reveal that a large percentage of individuals struggle on a daily basis.
Strategies for Managing Inhibitor Development in Hemophilia
The mainstay of hemophilia treatment is impeded by a stubborn problem that can sometimes drastically reduce its efficacy.
Using Thrombin Generation Assays to Monitor the Effects of Hemophilia A Therapy
Research shows thrombin generation assays can monitor the efficacy of hemophilia A treatment in a way that the mere monitoring of plasma FVIII activity cannot.
Acquired Hemophilia A: An Underdiagnosed and Undermanaged Condition
What is acquired hemophilia A, and why is it underdiagnosed and undermanaged? We attempt to answer these questions and more.
Addressing the Shortcomings of Pain Management in Hemophilia Care
We discuss the importance of pain management in hemophilia care and the effort of Italian doctors to arrive at a consensus on this issue.
Progress in Hemophilia Treatment Approaches Varies Among Countries
We compare hemophilia treatment strategies and approaches among different countries, particularly Japan and China.
From Management to a Cure: The Shifting Treatment Landscape of Hemophilia
We explore how the treatment landscape of hemophilia is changing as scientists race to find a permanent cure.
Barriers Remain in Gene Therapy for Hemophilia Despite Clinical Advancements
An increasing number of studies support the use of gene therapy in patients with hemophilia. However, several factors restrict its wide application.
Hemophilia Features
Hemophilia May Benefit From Redosable Gene Therapy
Generation Bio is working to “create the next generation of gene therapy” that will enable the redosable, durable expression of missing proteins.
Israel Emerges as Global Powerhouse in Rare Disease Research
When it comes to rare disorders, Israel—a New Jersey-sized nation of 9.3 million that’s made headlines this year for its highly successful coronavirus vaccination campaign—is clearly an emerging powerhouse.
NORD Recognizes Progress in Fight Against Rare Disease With 2021 Rare Impact Awards
Under COVID-19’s lingering shadow, the National Organization of Rare Disorders (NORD) has presented its 2021 Rare Impact Awards to 24 pharmaceutical firms, researchers, politicians, and nonprofit groups for their efforts over the past year on behalf of patients with such illnesses.
FDA, CDC Urge COVID-19 Vaccines for Rare Disease Patients on NORD Webinar
As the super-contagious Delta variant of COVID-19 sweeps across the globe, driving up infection rates as well as deaths, top US health officials are urging everyone 12 and older—including the country’s 30 million or so rare disease patients—to get vaccinated quickly.
Rare Care Podcast
The Pursuit of Redosable Gene Therapies for Hemophilia with Dr. Doug Kerr
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