Latest News
Targeting MRP1 Has Therapeutic Potential in Imatinib-Resistant GIST
Researchers Recommend Using Ki-67 as GIST Prognostic Indicator
Preoperative Computed Tomography May Underestimate Gastric GIST Size
Novel Multikinase Receptor Inhibitor Shows Therapeutic Potential in GIST
First Patient Treated With THE-630 in GIST Phase 1/2 Trial
Clear Panel Design Criteria Can Ensure Accuracy of LCFAOD Diagnosis
Study Reports Very Rare Case of Gastrointestinal Stromal Tumor in the Liver
Extragastrointestinal Stromal Tumors May Lead to Worse Outcomes Than GISTs
T-B Sign May Be a Novel Prognostic Factor for Gastrointestinal Stromal Tumor
Latest Clinical Trials
Features
Israel Emerges as Global Powerhouse in Rare Disease Research
TEL AVIV, Israel — On the 6th floor of Schneider Children’s Hospital in the Tel Aviv suburb of Petah Tikva, 30 children with Alagille syndrome and 2 with lysosomal acid lipase deficiency (LAL-D) receive specialized treatment from a trio of pediatric hepatologists. Across town, at Sheba Medical Center’s Edmond and Lily Safra Children’s Hospital, pediatric…
NORD Recognizes Progress in Fight Against Rare Disease With 2021 Rare Impact Awards
Under COVID-19’s lingering shadow, the National Organization of Rare Disorders (NORD) has presented its 2021 Rare Impact Awards to 24 pharmaceutical firms, researchers, politicians, and nonprofit groups for their efforts over the past year on behalf of patients with such illnesses. The virtual ceremony was hosted by John Whyte, MD, MPH, chief medical officer at WebMD, with commentary…
Long-Term GIST Survivors Share Their Stories to Help Improve Patient Care
Colorado dentist John Abrams had to give up his career because of severe hand cramping — a side effect of the medication he took to control his gastrointestinal stromal tumor (GIST). Monica Anderson, a dental surgeon from Texas, got food poisoning in 2012 after going out with her friends to celebrate a new job. While…
Patient Perspectives
A GIST Patient’s Journey: A Quest to be Heard
When diagnosed with a gastrointestinal stromal tumor (GIST) or any rare disease, the patient usually sees a doctor specializing in the treatment of that disease. Unfortunately, I live on a rock in the middle of the ocean, which makes finding the right doctor especially difficult.
Help GIST Patients Find Their New Normal
Many cancer patients would disagree, but GIST cancer has been both the best and worst thing that has ever happened to me.
A Frontline View: A Clinical Trial For Pediatric and Wildtype (SDHA) GIST
Three years ago, I heard one of the many things a cancer patient does not want to hear, “You have new growths. You’ve relapsed.” It was the first time I cried because of my cancer diagnosis, reality finally hit, and I was devastated. Relapsing with pediatric and wildtype (SDHA) gastrointestinal stromal tumor (GIST) was hard…
GIST Clinical Insights
The Benefits of Laparoscopic Surgery vs Open Surgery for GIST
We describe the numerous benefits that laparoscopic surgery confers to patients with GIST, compared to open surgery.
How Patient Education Impacts Adherence to Imatinib Among Patients With GIST
We explore a Chinese study on adherence to imatinib among GIST patients and how patient adherence can be improved in general.
A Rare Case Report of Ovarian Metastasis in GIST
Yamagachi and colleagues described a rare case report of a female patient with a gastrointestinal stromal tumor with ovarian metastasis.
Comparing Patient Outcomes Before and After the Introduction of Imatinib
We explore the impact of imatinib on outcomes of patients with gastrointestinal stromal tumors, as well as ways to prevent resistance to it.
Rare Care Podcast
Advocating for People With Gastrointestinal Stromal Tumor: An interview with Peter Knox, senior research director at the Life Raft Group
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