Latest News
Male Sex Associated With Poor Prognosis in GIST
GIST, Cholangiocarcinoma Groups Work to Educate Clinicians on Rare Cancers
GIST Recurrence Risk Higher With Certain KIT Exon 11 Mutations
Predictive Model for GIST Diagnosis and Lesion Management Developed
Long-Term Survival of Patients With GISTs Similar With Endoscopic Resection and Surgery
Experts Recommend Surgical Resection for GISTs Between 2 cm and 5 cm
Pimitespib May Prevent GIST Progression in Some Patients
Liver Transplantation Still Rarely Used to Treat Unresectable GIST Metastases
New GIST Subtypes Identified Based on Long Noncoding RNA Signature
Latest Clinical Trials
Features
Israel Emerges as Global Powerhouse in Rare Disease Research
TEL AVIV, Israel — On the 6th floor of Schneider Children’s Hospital in the Tel Aviv suburb of Petah Tikva, 30 children with Alagille syndrome and 2 with lysosomal acid lipase deficiency (LAL-D) receive specialized treatment from a trio of pediatric hepatologists. Across town, at Sheba Medical Center’s Edmond and Lily Safra Children’s Hospital, pediatric…
NORD Recognizes Progress in Fight Against Rare Disease With 2021 Rare Impact Awards
Under COVID-19’s lingering shadow, the National Organization of Rare Disorders (NORD) has presented its 2021 Rare Impact Awards to 24 pharmaceutical firms, researchers, politicians, and nonprofit groups for their efforts over the past year on behalf of patients with such illnesses. The virtual ceremony was hosted by John Whyte, MD, MPH, chief medical officer at WebMD, with commentary…
Long-Term GIST Survivors Share Their Stories to Help Improve Patient Care
Colorado dentist John Abrams had to give up his career because of severe hand cramping — a side effect of the medication he took to control his gastrointestinal stromal tumor (GIST). Monica Anderson, a dental surgeon from Texas, got food poisoning in 2012 after going out with her friends to celebrate a new job. While…
Patient Perspectives
A GIST Patient’s Journey: A Quest to be Heard
When diagnosed with a gastrointestinal stromal tumor (GIST) or any rare disease, the patient usually sees a doctor specializing in the treatment of that disease. Unfortunately, I live on a rock in the middle of the ocean, which makes finding the right doctor especially difficult.
Help GIST Patients Find Their New Normal
Many cancer patients would disagree, but GIST cancer has been both the best and worst thing that has ever happened to me.
A Frontline View: A Clinical Trial For Pediatric and Wildtype (SDHA) GIST
Three years ago, I heard one of the many things a cancer patient does not want to hear, “You have new growths. You’ve relapsed.” It was the first time I cried because of my cancer diagnosis, reality finally hit, and I was devastated. Relapsing with pediatric and wildtype (SDHA) gastrointestinal stromal tumor (GIST) was hard…
GIST Clinical Insights
The Promising, Yet Challenging, Role of Immunotherapies in GIST Research
The challenge for scientists is to develop immunotherapies targeting new molecular sites that can provide consistent clinical benefits in GIST patients.
Improvements in the Clinical Management of Advanced GIST
The clinical management of metastatic gastrointestinal stromal tumor (GIST) has greatly improved since the early 2000s.
Molecular Diagnosis of Gastrointestinal Stromal Tumors
A review of current clinical practices provides a valuable snapshot of where we are today in terms of the molecular diagnosis of cancers such as GISTs.
Predicting Prognosis in Patients With GIST
Much scientific research in recent years has centered on uncovering prognostic indicators for malignant diseases. The main goal of treatment is always curative, but in cases in which that is currently impossible, the physician’s attention then turns toward extending and improving the quality of life of patients. Gastrointestinal stromal tumors (GIST) are cancers that can…
Rare Care Podcast
Advocating for People With Gastrointestinal Stromal Tumor: An interview with Peter Knox, senior research director at the Life Raft Group
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