Latest CF News
Spexis Trial Supports the Efficacy and Safety of Inhaled Murepavadin
Impaired SARS-CoV-2 Viral Entry and Replication Seen in Patients With CF
Elexacaftor/Tezacaftor/Ivacaftor Halts Lung Function Decline in Patients With CF
Patients With CF Have Increased Gut Microbiota Linked With Colorectal Cancer
Multiple Tools Can Help Increase Physical Activity, Aerobic Capacity in Patients With CF
AATD Is Not Prevalent Among Patients With Cystic Fibrosis
New Study Shows Altered Gut-Lung Axis in Children With Cystic Fibrosis
FDA Clears IND Application for Potential mRNA Therapy for Cystic Fibrosis
Study Highlights Prevalence of Respiratory Sleep Disorders in Adult CF
Phase 1/2 Trial Highlights Treatment Options of Cystic Fibrosis
HTS Technology May Identify Patients for CF Disease-Modifying Therapies
Positive Topline Results Announced for Lefamulin in Adults With CF
Positive Results Seen With ETI Treatment in Patients With CF
Specialist Palliative Care Enhances Quality of Life for Adults With CF
Challenged Bicarbonate Excretion May Be a Biomarker of CFTR Function in CF
Novel Cystic Fibrosis Drug Preserved Lung Function in a 6-Week Study
CF Clinical Trials
Insights
Can Physical Activity Improve Outcomes in Patients With Cystic Fibrosis?
As medicine marches forward in increasingly unexplored territory, a significant number of physicians are advocating for a return to basics and the rediscovery of treatment modalities that are accessible to individuals in most parts of the world. In cystic fibrosis, physicians and physiotherapists alike are once again highlighting the benefits of physical activity and exercise…
The Evolving Face of Cystic Fibrosis Care
While there is still no cure for cystic fibrosis, various advancements in the way the disease is treated have been made.
Expert Recommendations for Pregnancy in CF
Almost 80% of young women with CF want to become pregnant. However, guidelines to assist these women are scare currently
The COVID-19 Lockdown Had Both Pros and Cons for Patients With Cystic Fibrosis
Several studies have highlighted the resilience of patients with cystic fibrosis in coping with the pandemic and even found some resulting positive changes.
Regenerative Liver Medicine Could Help Overcome Transplant Limitations
Liver organoids have been used to regenerate hepatocellular parenchyma and bile ducts, providing a convenient platform for research and clinical purposes.
Patient Perspectives
What My Cystic Fibrosis Care Team Does Right
The other day, I had a follow-up clinic visit for cystic fibrosis. In the waiting room for my pulmonary function tests, I noticed how aggravated I was.
Where My Life With Cystic Fibrosis Began and Where It Leaves Me Now
The goal for my life was tragically simple: I just wanted to celebrate my 21st birthday and then take my last breath.
See Me, the Person, Not Me in My Wheelchair
A lot of people see the wheelchair and automatically assume we can not do anything or they feel sorry for people like us. I do not want anyone to feel sorry for me, because I do not feel sorry for myself.
Cystic Fibrosis Features
Omidubicel Shows Promise as Replacement for Umbilical Cord Blood in Stem Cell Transplants
Gamida Cell is gearing up to begin sales of omidubicel from Israel to US hospitals for use in stem cell transplants, pending FDA approval of the therapy.
At 40, Orphan Drug Act Enjoys Rare Bipartisan Support
Rare disease advocates are marking the 40th anniversary of the landmark Orphan Drug Act, which has led to over 1100 approvals for new therapies.
CFF and Industry Researchers Team Up to Unlock Genetic Solutions to Treating CF
The Cystic Fibrosis Foundation has expanded operations at its CFF Therapeutics Lab in Lexington, Massachusetts, to foster more research on the disease.
The Alliance for Regenerative Medicine Fights for Better Cell, Gene Therapies
The Alliance for Regenerative Medicine aims to help in the development of safe and effective regenerative therapies that can benefit rare disease patients.
Rare Care Podcast
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