Latest News
People With Rare Diseases Report Facing Stigma, Poor Quality of Life
Potential CAD Treatment Appears Safe, Well-Tolerated in Healthy Adults
Case Report: Treating CAD Following COVID-19 Infection
CAD Secondary to SARS-CoV-2 Treated With Eculizumab: A Case Report
Researchers Identify New Therapeutic Targets for CAD
Cases of CAD Secondary to Immunotherapy Increasing, Study Finds
Necrosis Develops as a Secondary Complication in CAD Study
CAD Presents With Digital Gangrene: A Case Report
Reactivity Testing Differentiates CAD From Other AIHA Types
Corticosteroids as a Potential Treatment for CAD Secondary to COVID-19
CAD Successfully Treated With Steroids: A Case Report
Increased Mortality Persists in CAD, 37-Year Follow-Up Study Shows
Novel Therapeutic Approach for CAD Targets Complement Activation
FANA Positivity Associated With Poor Clinical Outcomes in AIHA
CAD Clinical Trials
CAD Features
Rare Disease Day 2022: Health Care Policy and Protections Still Lacking in Many States
NORD and other rare disease organizations around the world will celebrate Rare Disease Day on February 28, 2022, with most events being held virtually.
Florida Fiber Artist Advocates for Fellow Cold Agglutinin Disease Patients
Abstract artist Betty Usdan-Zwickler, 83, of Boca Raton, Florida, is also a fierce advocate for fellow patients with cold agglutinin disease (CAD).
CAD Foundation Strives to Increase Knowledge of Rare Autoimmune Hemolytic Anemia
The all-volunteer CAD Foundation fights for patients with a rare anemia that has no approved therapy. Three companies are conducting clinical trials.
Updates on the Treatment of Cold Agglutinin Disease
Given the rarity of CAD and lack of comparative trials, treatment plans are primarily based on findings from nonrandomized trials and clinical experience.
Patient Perspectives
Staying Hydrated Is Essential for People With Cold Agglutinin Disease
Obviously, dehydration is dangerous for anyone, especially if it is extreme. However, for people with conditions like CAD, it has an added level of urgency.
Cautions and Risks When Living With Cold Agglutinin Disease
CAD is not a well-known disease, which means it is typically up to the patient to instruct the physician on the steps necessary to be safe.
Connecting the Dots Between CAD and Digestive Issues
The year prior to my diagnosis, I had daily stomach issues and dark urine. I did not know it at the time, but I was experiencing hemolysis.
CAD Insights
Advancing Our Knowledge of Cold Agglutinin Disease and Its Treatments
Because cold agglutinin disease (CAD) is a rare subset of another rare disease, very few medical researchers devote entire studies to exploring it.
The Far-Reaching Impact of Innovative Clinical Trial Designs in Rare Disease
We examine the lasting impact of innovative clinical trial designs for rare diseases on other clinical experiments.
The Effects of Seasonal Change on Patients With Cold Agglutinin Disease
Cold agglutinin disease, like seasonal affective disorder and Raynaud’s phenomenon, can be adversely affected by the climate.
The Link Between Infections, Cold Agglutinin Disease, and Its Treatments
Infections are often overlooked in autoimmune hemolytic anemia (AIHA), although they can impact morbidity and mortality of patients.
Inflammation May Play a Role in Cold Agglutinin Disease
Autoimmune hemolytic anemia, of which cold agglutinin disease is a subtype, is one of several autoimmune diseases that involve an aberrant inflammatory pathway.
The Rise of Telemedicine in the Treatment of Cystic Fibrosis and Other Illnesses
We discuss the sharp rise of telemedicine services in the US and what it means for cystic fibrosis patient care.
Rare Care Podcast
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