Award-winning chef Christine Há, who is blind as a result of her NMOSD, is the public face of a new initiative called “NMOSD Won’t Stop Me.”
NORD and other rare disease organizations around the world will celebrate Rare Disease Day on February 28, 2022, with most events being held virtually.
People of African origin are 2-3 times more likely than Caucasians to develop NMOSD. Evanthia Bernitsas, MD, has spent much of her career trying to understand why.
Neuropathic pain is frequent in NMOSD patients and conventional medications for neuropathic pain management have limited efficacy, a review shows.
The Guthy-Jackson Charitable Foundation and the Siegel Rare Neuroimmune Association are racing to find a cure for neuromyelitis optica spectrum disorder (NMOSD).
When it comes to rare disorders, Israel—a New Jersey-sized nation of 9.3 million that’s made headlines this year for its highly successful coronavirus vaccination campaign—is clearly an emerging powerhouse.