Variability of Myasthenia Gravis Symptoms Makes Diagnosing, Treating the Disease Difficult
Myasthenia gravis (MG) is a complicated disease that takes an average of 2 years and 3 to 4 physicians to diagnose, expert Henry Kaminski, MD, said.
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Patient Advocate Meridith O’Connor Helps Others Navigate the Myasthenia Gravis Journey
Meridith O’Connor, who has myasthenia gravis, founded The Merit Option to help other patients manage life with the disease.
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Rare Disease Day 2022: Health Care Policy and Protections Still Lacking in Many States
NORD and other rare disease organizations around the world will celebrate Rare Disease Day on February 28, 2022, with most events being held virtually.
Using Technology to Boost Ethnic, Geographic Diversity in Clinical Trials
Eliminating geographic and ethnic bias in clinical trials for rare diseases is the goal of Jeeva Informatics, says founder and CEO Harsha K. Rajasimha, PhD.
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Israel Emerges as Global Powerhouse in Rare Disease Research
When it comes to rare disorders, Israel—a New Jersey-sized nation of 9.3 million that’s made headlines this year for its highly successful coronavirus vaccination campaign—is clearly an emerging powerhouse.
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NORD Recognizes Progress in Fight Against Rare Disease With 2021 Rare Impact Awards
Under COVID-19’s lingering shadow, the National Organization of Rare Disorders (NORD) has presented its 2021 Rare Impact Awards to 24 pharmaceutical firms, researchers, politicians, and nonprofit groups for their efforts over the past year on behalf of patients with such illnesses.
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