Three Lakes Foundation and CHEST Collaborating to Speed Up Diagnosis of IPF
A pulmonary fibrosis foundation and a professional medical association have teamed up to slash the time it takes to diagnose idiopathic pulmonary fibrosis.
IPF Features
Updated Clinical Practice Guidelines Provide Strategies for Diagnosing and Treating IPF
An updated set of clinical practice guidelines has been issued for the diagnosis and treatment of idiopathic pulmonary fibrosis in adults.
Aytu BioPharma’s Healight Device Could Help Treat Rare Pulmonary Diseases
Aytu BioPharma has developed an endotracheal respiratory catheter which its CEO says has “tremendous potential” in IPF, PAH, and other respiratory diseases.
Michigan Pulmonologist Witnesses COVID-19’s Profound Impact on Patients With IPF
Pulmonologist MeiLan K. Han, MD, MS, leads groundbreaking research on oxygen delivery in chronic lung disease and has also written a book on the subject.
New Venture Aims to Improve Diagnosis, Treatment of Pulmonary Fibrosis
Three Lakes Foundation, Yale University, and the University of Pittsburgh are joining forces to speed up the search for treatments for pulmonary fibrosis.
AATD Features, ALGS Features, CAD Features, CC Features, CF Features, DMD Features, Features, GIST Features, HEM Features, IPF Features, LAL-D Features, LCFAOD Features, MG Features, NMOSD Features, PAH Features, Pompe Features, SCD Features, SMA Features
Israel Emerges as Global Powerhouse in Rare Disease Research
When it comes to rare disorders, Israel—a New Jersey-sized nation of 9.3 million that’s made headlines this year for its highly successful coronavirus vaccination campaign—is clearly an emerging powerhouse.
Dr. Noah Greenspan, Advocacy Groups: Avoiding COVID-19 Holds a Special Urgency for IPF Patients
Nearly 11 years ago, Dallas, Texas retiree Bill Vick was training for a triathlon and noticed that his swimming performance had started to decline. At the time, he was 72 and seemingly in peak health. “I went to the doctor, not because I felt bad, but because I was worried about my times and distances,…
Treating IPF Patients in the Age of COVID-19
NEW YORK, New York — Noah Greenspan, DPT, says the pulmonary fibrosis (PF) patients and others who had been coming to his Pulmonary Wellness and Rehabilitation Center until he closed it in March 2020 in the wake of the COVID-19 pandemic were among “the oldest, sickest, most complex patients in the book.” Since then, the…
AATD Features, ALGS Features, CAD Features, CC Features, CF Features, DMD Features, Features, GIST Features, HEM Features, Human Interest, IPF Features, LAL-D Features, LCFAOD Features, MG Features, MTC Features, PAH Features
NORD Recognizes Progress in Fight Against Rare Disease With 2021 Rare Impact Awards
Under COVID-19’s lingering shadow, the National Organization of Rare Disorders (NORD) has presented its 2021 Rare Impact Awards to 24 pharmaceutical firms, researchers, politicians, and nonprofit groups for their efforts over the past year on behalf of patients with such illnesses.
AATD Features, ALGS Features, CAD Features, CC Features, DMD Features, Features, GIST Features, HEM Features, Human Interest, IPF Features, LAL-D Features, LCFAOD Features, MS Features, MTC Features, PAH Features
FDA, CDC Urge COVID-19 Vaccines for Rare Disease Patients on NORD Webinar
As the super-contagious Delta variant of COVID-19 sweeps across the globe, driving up infection rates as well as deaths, top US health officials are urging everyone 12 and older—including the country’s 30 million or so rare disease patients—to get vaccinated quickly.
- Loading...
Loading...
Want to read more?
Please login or register first to view this content.
Next post in Features
Loading... 
Loading...