Skip to navigation Skip to main content

AATD Features

Hagit Baris-Feldman
AATD Features, ALGS Features, CAD Features, CCA Features, CF Features, DMD Features, Features, GIST Features, HEM Features, IPF Features, LAL-D Features, LCFAOD Features, MG Features, NMOSD Features, PAH Features, Pompe Features, SCD Features, SMA Features

Israel Emerges as Global Powerhouse in Rare Disease Research

By
Publish Date

When it comes to rare disorders, Israel—a New Jersey-sized nation of 9.3 million that’s made headlines this year for its highly successful coronavirus vaccination campaign—is clearly an emerging powerhouse. 

Stem cell research
AATD Features, Features, Human Interest

Researchers Exploring Multiple Mechanisms of Action for Treating AATD

By
Publish Date

Faron Schonfeld, a successful investment portfolio manager from Philadelphia, Pennsylvania, had for years suffered chronic coughing and sinus infections that only seemed to get worse. He was finally referred to a pulmonologist at National Jewish Health in Denver, Colorado.  That’s where he got the diagnosis: Schonfeld had alpha-1 antitrypsin deficiency (AATD, or simply alpha-1) —…

NORD t-shirts for sale
AATD Features, ALGS Features, CAD Features, CCA Features, CF Features, DMD Features, Features, GIST Features, HEM Features, Human Interest, IPF Features, LAL-D Features, LCFAOD Features, MG Features, MTC Features, PAH Features

NORD Recognizes Progress in Fight Against Rare Disease With 2021 Rare Impact Awards

By
Publish Date

Under COVID-19’s lingering shadow, the National Organization of Rare Disorders (NORD) has presented its 2021 Rare Impact Awards to 24 pharmaceutical firms, researchers, politicians, and nonprofit groups for their efforts over the past year on behalf of patients with such illnesses.

Alpha-1 Antitrypsin Deficiency & COVID-19
AATD Features, Features, KOL

Examining the Links Between SARS-CoV-2 and Alpha-1 Antitrypsin Deficiency

By
Publish Date

Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection can cause a variety of symptoms, and people with chronic lung disease including chronic obstructive pulmonary disease (COPD), chronic liver disease especially cirrhosis, diabetes, and cardiovascular disease are among those who are more prone to develop severe infection. We now know that severe SARS-CoV-2 infection is mainly…

NORD banners
AATD Features, ALGS Features, CAD Features, CCA Features, DMD Features, Features, GIST Features, HEM Features, Human Interest, IPF Features, LAL-D Features, LCFAOD Features, MS Features, MTC Features, PAH Features

FDA, CDC Urge COVID-19 Vaccines for Rare Disease Patients on NORD Webinar

By
Publish Date

As the super-contagious Delta variant of COVID-19 sweeps across the globe, driving up infection rates as well as deaths, top US health officials are urging everyone 12 and older—including the country’s 30 million or so rare disease patients—to get vaccinated quickly.

  • Loading...

    Continuing Medical Education (CME/CE) Courses

    Show More

Next post in Features