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Hagit Baris-Feldman
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Israel Emerges as Global Powerhouse in Rare Disease Research

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When it comes to rare disorders, Israel—a New Jersey-sized nation of 9.3 million that’s made headlines this year for its highly successful coronavirus vaccination campaign—is clearly an emerging powerhouse. 

Stem cell research
AATD Features, Features, Human Interest

Researchers Exploring Multiple Mechanisms of Action for Treating AATD

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Faron Schonfeld, a successful investment portfolio manager from Philadelphia, Pennsylvania, had for years suffered chronic coughing and sinus infections that only seemed to get worse. He was finally referred to a pulmonologist at National Jewish Health in Denver, Colorado.  That’s where he got the diagnosis: Schonfeld had alpha-1 antitrypsin deficiency (AATD, or simply alpha-1) —…

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NORD Recognizes Progress in Fight Against Rare Disease With 2021 Rare Impact Awards

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Under COVID-19’s lingering shadow, the National Organization of Rare Disorders (NORD) has presented its 2021 Rare Impact Awards to 24 pharmaceutical firms, researchers, politicians, and nonprofit groups for their efforts over the past year on behalf of patients with such illnesses.

Alpha-1 Antitrypsin Deficiency & COVID-19
AATD Features, Features, KOL

Examining the Links Between SARS-CoV-2 and Alpha-1 Antitrypsin Deficiency

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Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection can cause a variety of symptoms, and people with chronic lung disease including chronic obstructive pulmonary disease (COPD), chronic liver disease especially cirrhosis, diabetes, and cardiovascular disease are among those who are more prone to develop severe infection. We now know that severe SARS-CoV-2 infection is mainly…

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AATD Features, ALGS Features, CAD Features, CC Features, DMD Features, Features, GIST Features, HEM Features, Human Interest, IPF Features, LAL-D Features, LCFAOD Features, MS Features, MTC Features, PAH Features

FDA, CDC Urge COVID-19 Vaccines for Rare Disease Patients on NORD Webinar

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As the super-contagious Delta variant of COVID-19 sweeps across the globe, driving up infection rates as well as deaths, top US health officials are urging everyone 12 and older—including the country’s 30 million or so rare disease patients—to get vaccinated quickly.

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