Prader-Willi Syndrome Association 2023 National Convention & EL-PFDD

Features

Multiple Clinical Trials Seek New Approach to Treating Prader-Willi Syndrome

By

Larry Luxner

Publish Date September 14, 2023

Several investigational therapies are being evaluated for the treatment of Prader-Willi syndrome, a rare disease marked by persistent hyperphagia.

PWS 2023

Weighing the Risks of Experimental Treatment Against the Burden of PWS 

By

Terri Airov

Publish Date August 2, 2023

Caregivers of patients with Prader-Willi syndrome said they need new treatments so much that they are willing to accept the potential risks they may carry.

PWS 2023

Serious Medical Events Found to Be Common in Patients With PWS

By

Terri Airov

Publish Date June 25, 2023

Patients with Prader-Willi syndrome commonly experience serious medical events, according to a presentation at a PWS association’s national convention.

PWS 2023

Enhancing Development of the Hypothalamus Could Help Treat PWS

By

Terri Airov

Publish Date June 25, 2023

Psychiatrist Tony Holland, MD, discussed a promising therapeutic approach at the Prader-Willi Syndrome Association’s 2023 National Convention.

Rare Disease Advisor was proud to cover the Prader-Willi Syndrome (PWS) Association’s 2023 National Convention & EL-PFDD, held June 21-24, 2023, in Orlando, Florida. Stay tuned to RDA as we offer live, comprehensive coverage of the event, plus expanded coverage featuring exclusive stories and interviews with rare disease leaders and influencers in the PWS sphere.