Terri Airov

All articles by Terri Airov

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An Interview With LCFAOD Patient Advocate Eileen Sullivan Baker

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Eileen Sullivan Baker, an Ohio attorney whose son, John, has long chain fatty acid oxidation disorder (LCFAOD). She has become an outspoken advocate for people with LCFAOD, in the absence of any formal patient advocacy organization. Read the full story here: Son’s Illness Drives Ohio Attorney…

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An Interview With CureDuchenne Chief Scientific Officer Dr. Michael Kelly

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Michael Kelly, PhD, chief scientific officer at CureDuchenne, on the latest developments in exon skipping, gene therapy, and other treatments for Duchenne muscular dystrophy. Read the full story here: Gene Therapy Could Emerge as a DMD Treatment in 2023

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