An Interview With Mindy Henderson, Editor-in-Chief of MDA’s Quest Magazine
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mindy Henderson, who has SMA and is editor-in-chief of the MDA’s Quest magazine.
All articles by Terri Airov
An Interview With DMD Patient Advocate Christopher Curran
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Christopher Curran, who with his wife founded Kindness Over Muscular Dystrophy.
An Interview With Luisa Leal, Founder and CEO of The Akari Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Luisa Leal, founder and CEO of The Akari Foundation, a DMD-focused nonprofit.
An Interview With Leah Zelaya, a 2023 MDA National Ambassador
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Leah Zelaya, a 2023 national ambassador of the Muscular Dystrophy Association.
An Interview With Dr. Julie Parsons of Children’s Hospital Colorado
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Julie Parsons, MD, of Children’s Hospital Colorado in Aurora.
An Interview With Advocate Christopher Rosa, PhD, Viscardi Group President and CEO
In this episode of the Rare Care podcast, Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Christopher Rosa, PhD, president and CEO of the Viscardi Group. Dr. Rosa, who has limb-girdle muscular dystrophy, is a longtime advocate for the community of people with disabilities. His chief mission now is pushing legislation that will require…
An Interview With Pulmonary Hypertension Association President and CEO Matt Granato
Senior correspondent Larry Luxner interviews Matt Granato, president and CEO of the Pulmonary Hypertension Association (PHA), about World PH Day on May 5.
An Interview With Ron Bartek, President of the Friedreich’s Ataxia Research Alliance
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ron Bartek, founding president of the Friedreich’s Ataxia Research Alliance (FARA).
An Interview With Royal Melbourne Hospital Hematology Professor Jeff Szer, BMedSc
Rare Disease Advisor senior correspondent Larry Luxner interviews Jeff Szer, BMedSc, a hematology professor and International PNH Interest Group secretary.
An Interview With Dr. John Berk, MD, of the Boston University Localized Amyloid Clinic
Rare Disease Advisor senior correspondent Larry Luxner, interviews John Berk, MD, director of the Localized Amyloid Clinic at Boston University.
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