Teaira Daniels, NMOSD Contributor

Teaira Daniels, born and raised in Cincinnati, Ohio, was diagnosed with neuromyelitis optica spectrum disorder (NMOSD) in 2015. Her daughter, Amariyah, passed away from the rare Pompe disease in 2009. Teaira, trained in broadcast media, is a powerful voice for the challenges NMOSD and other rare disease patients face. She lists music, traveling, and shopping as her leisure time activities.

All articles by Teaira Daniels, NMOSD Contributor

NMOSD Columns, Patient Perspectives

To My Fellow Rare Disease Patients: Celebrate Small Victories

Teaira Daniels, NMOSD Contributor

December 27, 2022

Having a rare disease like neuromyelitis spectrum disorder (NMOSD) can make you feel hopeless at times.

NMOSD Columns, Patient Perspectives

How the ‘System’ Works Against This Person Living With NMOSD

Teaira Daniels, NMOSD Contributor

November 3, 2022

You need and get basic medical coverage support from the government, but you pay a price that significantly limits the quality of life you could have.

NMOSD Columns, Patient Perspectives

Attending a Stadium Concert as a Wheelchair-Dependent Person With NMOSD

Teaira Daniels, NMOSD Contributor

October 13, 2022

Going to a major concert was quite the experience for me as a wheelchair-dependent person living with NMOSD.

NMOSD Columns, Patient Perspectives, Pompe Columns

Reflecting on the Passing of My Daughter at the Hands of Pompe Disease

Teaira Daniels, NMOSD Contributor

August 11, 2022

Neuromyelitis optica spectrum disorder (NMOSD) columnist Teaira Daniels reflects on the loss of her daughter, Amariyah, who passed away from Pompe disease.

NMOSD Columns, Patient Perspectives

Changes in Physical Therapy Routines Can Slow, Even Stop Progress

Teaira Daniels, NMOSD Contributor

July 7, 2022

Persons living with NMOSD value physical therapy to manage the symptoms, but who determines what progress is?

NMOSD Columns, Patient Perspectives

The Complexities of Air Travel for NMOSD and Other Rare Disease Patients

Teaira Daniels, NMOSD Contributor

June 23, 2022

A NMOSD patient offers advice to rare disease patients in wheelchairs planning to fly this summer.

NMOSD Columns, Patient Perspectives, Pompe Columns

My Daughter’s Fatal Struggle With Pompe, Then My Diagnosis With NMOSD

Teaira Daniels, NMOSD Contributor

January 11, 2022

Part 1 of 2: Neuromyelitis optica spectrum disorder (NMOSD) columnist Teaira Daniels sets the stage for how rare diseases turned her world upside down.

NMOSD Columns, Patient Perspectives

NMOSD: From Confusion to Diagnosis Then a Path Forward

Teaira Daniels, NMOSD Contributor

December 16, 2021

Columnist Teaira Daniels will provide valuable insights into living and learning from life with neuromyelitis optica spectrum disorder (NMOSD).

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