Miranda Bradnick, ALGS Contributor

ALGS Contributor

Miranda is a 34-year-old wife and mother of 4 kids who has been living and learning in the medical world for the last several years. She is the primary caregiver for her son, who received a liver transplant in 2019 at the age of 2, along with 2 other children and her husband, who have all been diagnosed with Alagille Syndrome (ALGS). She is passionate about educating others about ALGS, the liver transplant journey, and promoting organ donation as a way to help other families who find themselves as part of this community.

All articles by Miranda Bradnick, ALGS Contributor

Children at preschool

ALGS Columns, Patient Perspectives

Virus Threats Mean Constant Monitoring of Symptoms in My Son’s Battle With ALGS

By

Miranda Bradnick, ALGS Contributor

January 26, 2023

Stomach viruses can become challenging for those with rare diseases such as Alagille syndrome (ALGS).

test tube

ALGS Columns, Patient Perspectives

The Many Ways ALGS Turns Your Life Upside Down

By

Miranda Bradnick, ALGS Contributor

January 17, 2023

As a parent of a child with ALGS the doctor appointments, routine visits, and lab work visits can be a lot to manage.

xanthoma

Managing My Son’s Xanthomas Amid Alagille Syndrome

By

Miranda Bradnick, ALGS Contributor

January 5, 2023

When my son’s liver disease progressed due to Alagille syndrome (ALGS) his xanthomas worsened.

Child in hospital

ALGS Columns, Patient Perspectives, Uncategorized

Living With ALGS Means a Relentless Fear of Germs and Viruses

By

Miranda Bradnick, ALGS Contributor

December 28, 2022

Being the caregiver for someone with Alagille syndrome can come with its own set of challenges and emotions.

Monitoring of the patient in hospital

ALGS Columns, Patient Perspectives

To My ALGS Community: Focus on Long-Term Effects of General Anesthesia

By

Miranda Bradnick, ALGS Contributor

December 7, 2022

The first time my son underwent general anesthesia related to his ALGS is something that I will never forget.

liver transplant

ALGS Columns, Patient Perspectives

I Would Like to Say Thank You to My Son’s Liver Transplant Donor

By

Miranda Bradnick, ALGS Contributor

November 29, 2022

The night we received the phone call for my son to receive his liver transplant due to ALGS was chaotic.

covid vaccine vials

ALGS Columns, Patient Perspectives

How COVID Affects Alagille Syndrome in the Long Term

By

Miranda Bradnick, ALGS Contributor

November 22, 2022

When COVID started to become a concern in 2020, I wasn’t sure how it could potentially affect my son, who has with Alagille syndrome.

scale

ALGS Columns, Patient Perspectives

Maintaining a Healthy Weight While Managing ALGS

By

Miranda Bradnick, ALGS Contributor

November 16, 2022

Gaining and maintaining a healthy weight can be a concern for someone diagnosed with Alagille syndrome (ALGS).

Epidemiology of AATD

ALGS Columns, Patient Perspectives

My Son’s Liver Transplant Anniversary: A Time of Gratitude

By

Miranda Bradnick, ALGS Contributor

November 10, 2022

Jackson was transplanted when he was 2 years old due to liver disease from Alagille syndrome (ALGS).

liver transplant

ALGS Columns, Patient Perspectives

The ALGS Diagnosis: The Day Life Changed for My Family

By

Miranda Bradnick, ALGS Contributor

November 3, 2022

When my son had his first medical liver evaluation, it restarted our entire life as we knew it, with now having to manage Alagille syndrome

Next post in ALGS Columns

Children at preschool

How a 504 Plan Helps My Son Manage His ALGS