Stomach viruses can become challenging for those with rare diseases such as Alagille syndrome (ALGS).
All articles by Miranda Bradnick, ALGS Contributor
When my son’s liver disease progressed due to Alagille syndrome (ALGS) his xanthomas worsened.
Being the caregiver for someone with Alagille syndrome can come with its own set of challenges and emotions.
The first time my son underwent general anesthesia related to his ALGS is something that I will never forget.
The night we received the phone call for my son to receive his liver transplant due to ALGS was chaotic.
When COVID started to become a concern in 2020, I wasn’t sure how it could potentially affect my son, who has with Alagille syndrome.
Jackson was transplanted when he was 2 years old due to liver disease from Alagille syndrome (ALGS).
When my son had his first medical liver evaluation, it restarted our entire life as we knew it, with now having to manage Alagille syndrome