Virus Threats Mean Constant Monitoring of Symptoms in My Son’s Battle With ALGS
Stomach viruses can become challenging for those with rare diseases such as Alagille syndrome (ALGS).
Stomach viruses can become challenging for those with rare diseases such as Alagille syndrome (ALGS).
As a parent of a child with ALGS the doctor appointments, routine visits, and lab work visits can be a lot to manage.
When my son’s liver disease progressed due to Alagille syndrome (ALGS) his xanthomas worsened.
Being the caregiver for someone with Alagille syndrome can come with its own set of challenges and emotions.
The first time my son underwent general anesthesia related to his ALGS is something that I will never forget.
The night we received the phone call for my son to receive his liver transplant due to ALGS was chaotic.
When COVID started to become a concern in 2020, I wasn’t sure how it could potentially affect my son, who has with Alagille syndrome.
Gaining and maintaining a healthy weight can be a concern for someone diagnosed with Alagille syndrome (ALGS).
Jackson was transplanted when he was 2 years old due to liver disease from Alagille syndrome (ALGS).
When my son had his first medical liver evaluation, it restarted our entire life as we knew it, with now having to manage Alagille syndrome