Larry Luxner

Miami native Larry Luxner, a veteran journalist and photographer, has reported from more than 100 countries in Latin America, Africa, Eastern Europe, the Middle East and Asia for a variety of news outlets. He lived for many years in San Juan, Puerto Rico, and the Washington, D.C., area before relocating to Israel in January 2017. Prior to joining RareDiseaseAdvisor, Larry spent four years with BioNews Services writing news and features about the rare disease community from his base in Tel Aviv.

All articles by Larry Luxner

AATD Features, CF Features, IPF Features, PAH Features

Aytu BioPharma’s Healight Device Could Help Treat Rare Pulmonary Diseases

Larry Luxner

May 26, 2022

Aytu BioPharma has developed an endotracheal respiratory catheter which its CEO says has “tremendous potential” in IPF, PAH, and other respiratory diseases.

DMD Features, Features

Businessman Driven to Cure DMD After a Devastating Family Diagnosis

Larry Luxner

May 19, 2022

Ilan Ganot, CEO of Solid Biosciences, cofounded the company with his wife, Annie, after their son, Eytani, was diagnosed with Duchenne in 2012.

DMD News Briefs, DMD Podcasts, Podcasts

Solid Biosciences Founder Ilan Ganot Discusses His Quest for a Cure for DMD

Larry Luxner

May 19, 2022

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ilan Ganot, founder and CEO of Solid Biosciences, based in Cambridge, Massachusetts.

DMD Features, Features

Duchenne Gene Therapy Pioneer Dr. Jerry Mendell Reflects on a Lifetime of Research

Larry Luxner

May 13, 2022

Jerry R. Mendell, MD, professor of neurology and pediatrics at Nationwide Children’s Hospital has devoted his life’s work to curing DMD.

DMD News Briefs, DMD Podcasts, Podcasts

An Interview With DMD Expert and Gene Therapy Pioneer Dr. Jerry Mendell

May 13, 2022

Rare Disease Advisor senior correspondent Larry Luxner interviews DMD expert Jerry Mendell, MD, a professor at Nationwide Children’s Hospital in Columbus, Ohio.

Features, MG Features

Variability of Myasthenia Gravis Symptoms Makes Diagnosing, Treating the Disease Difficult

Larry Luxner

May 4, 2022

Myasthenia gravis (MG) is a complicated disease that takes an average of 2 years and 3 to 4 physicians to diagnose, expert Henry Kaminski, MD, said.

MG News Briefs, MG Podcasts, Podcasts

Dr. Henry Kaminski on the Difficulties of Treating Myasthenia Gravis

May 4, 2022

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Henry Kaminski, MD, on the difficulties of treating myasthenia gravis.

DMD Features, Features

Poster Child for ‘Right to Try’ Movement Marks 5 Years on Novel DMD Treatment

Larry Luxner

April 29, 2022

A video of Jordan McLinn, who has DMD, went viral when he tried to embrace then-President Trump before he signed the “Right to Try” bill at the White House.

DMD News Briefs, DMD Podcasts, News Briefs, Podcasts

Patient Advocate Laura McLinn Discusses Her Son’s Journey With DMD

April 29, 2022

Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Laura McLinn, the Indiana mom of 12-year-old Jordan McLinn, who has Duchenne muscular dystrophy (DMD). Jordan, who became the unofficial poster boy of the “Right to Try” movement, has just completed 5 years in a clinical trial for a novel exon 53 skipping therapy. Read…

Features, MS Features

Neuropsychiatrist’s New Book Explores Often Overlooked Behavioral Aspects of MS

Larry Luxner

April 25, 2022

Mind, Mood and Memory: The Neurobehavioral Consequences of Multiple Sclerosis explains the potential benefits of cognitive rehabilitation in people with MS.

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