Aytu BioPharma has developed an endotracheal respiratory catheter which its CEO says has “tremendous potential” in IPF, PAH, and other respiratory diseases.
All articles by Larry Luxner
Ilan Ganot, CEO of Solid Biosciences, cofounded the company with his wife, Annie, after their son, Eytani, was diagnosed with Duchenne in 2012.
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ilan Ganot, founder and CEO of Solid Biosciences, based in Cambridge, Massachusetts.
Jerry R. Mendell, MD, professor of neurology and pediatrics at Nationwide Children’s Hospital has devoted his life’s work to curing DMD.
Rare Disease Advisor senior correspondent Larry Luxner interviews DMD expert Jerry Mendell, MD, a professor at Nationwide Children’s Hospital in Columbus, Ohio.
Myasthenia gravis (MG) is a complicated disease that takes an average of 2 years and 3 to 4 physicians to diagnose, expert Henry Kaminski, MD, said.
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Henry Kaminski, MD, on the difficulties of treating myasthenia gravis.
A video of Jordan McLinn, who has DMD, went viral when he tried to embrace then-President Trump before he signed the “Right to Try” bill at the White House.
Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Laura McLinn, the Indiana mom of 12-year-old Jordan McLinn, who has Duchenne muscular dystrophy (DMD). Jordan, who became the unofficial poster boy of the “Right to Try” movement, has just completed 5 years in a clinical trial for a novel exon 53 skipping therapy. Read…
Mind, Mood and Memory: The Neurobehavioral Consequences of Multiple Sclerosis explains the potential benefits of cognitive rehabilitation in people with MS.