Even with Pompe Disease, my body learns to adapt.
Living with Pompe disease means I need to keep a watchful eye on any and all symptoms, such as migraines.
Here’s the thing about having surgery when you have Pompe, your surgeon doesn’t necessarily know about your disease.
Living with Pompe disease has always been a challenge to show your best.
Living with Pompe disease I feel like there’s always something to change or a goal to achieve.
As a patient with Pompe Disease, I am terrified of catching COVID and literally any other virus.
While Pompe disease doesn’t affect men and women any differently, it’s still very necessary to understand what it’s like for a woman with Pompe
I was diagnosed with late-onset Pompe disease when I was a young girl and I’ve been on Lumizyme® for more than 6 years.
As a person living with Pompe disease, traveling is one of my toughest challenges.
I’m no doctor but I can assure you if you don’t find peace, happiness, passion, and excitement in your life, a rare disease will eat you alive.
