I expected my physician to at least have the dignity to research Pompe disease privately, instead of in front of me.
Keyana Sullivan, diagnosed with Pompe disease, uses a wheelchair and is dependent on a ventilator. Nonetheless, she is very goal-oriented. Keyana is a creative writer with a bachelor's degree in psychology and has published 7 books. She loves to write and has an interest in film writing, music, and fashion.