Jakira Avery, MD Contributor

Jakira Avery was diagnosed with limb-girdle muscular dystrophy (LGMD) at a very young age. She uses a wheelchair and is dependent on a ventilator at night due to her having a tracheotomy. Jakira advocates for the disabled community. She enjoys listening to music, art, and spending time with family and friends.

All articles by Jakira Avery, MD Contributor

DMD Columns, Patient Perspectives, Uncategorized

My Escape From the Daily Struggles of Muscular Dystrophy: Music

Jakira Avery, MD Contributor

June 23, 2022

Music helps me forget how stressful it is at times living with limb-girdle muscular dystrophy (LGMD).

DMD Columns, Patient Perspectives

Wheelchair Accessibility Issues Persist for This Muscular Dystrophy Patient

Jakira Avery, MD Contributor

April 29, 2022

I can’t believe that, as a limb-girdle muscular dystrophy patient, I still have to worry about accessibility in 2022.

DMD Columns, Patient Perspectives

Don’t Penalize the Disabled for Working to Supplement Disability Insurance

Jakira Avery, MD Contributor

April 7, 2022

Living with limb-girdle muscular dystrophy (LGMD) with only one source of income a month is stressful.

CF Columns, DMD Columns, Patient Perspectives, Pompe Columns, SMA Columns

See Me, the Person, Not Me in My Wheelchair

Jakira Avery, MD Contributor

March 4, 2022

A lot of people see the wheelchair and automatically assume we can not do anything or they feel sorry for people like us. I do not want anyone to feel sorry for me, because I do not feel sorry for myself.