Holiday Cheer Much Harder for Rare Disease Patients
For me, suffering from systemic mastocytosis (SM), the holidays can be challenging on many levels.
For me, suffering from systemic mastocytosis (SM), the holidays can be challenging on many levels.
Since my journey with systemic mastocytosis (SM) began, many facets of my life have been altered.
When my journey culminated with a diagnosis of systemic mastocytosis (SM), my symptoms had already become a big problem.
It is widely known that COVID-19 can impact everyone differently, but for systemic mastocytosis (SM) patients, the effects can be powerful.
In the era of modern medicine, there are still many of us who fall through the cracks. Those with systemic mastocytosis are no strangers to this truth.
Living with systemic mastocytosis (SM) requires a unique set of tools to manage the anxiety this rare disease creates.
There were many confusing and frustrating steps along the path to my systemic mastocytosis diagnosis.