Bruce Campbell

Bruce is an advocate for Pompe disease. Confined to a wheelchair with complete paralysis, and being told he would never walk again, set Bruce in literal motion to engage in a range of sports and fitness practices to combat the disease. As owner of Aspire LiveFit coaching academy in Port Elizabeth, South Africa, Bruce uses his passion to LiveFit to create awareness of Pompe disease and inspire others.

All articles by Bruce Campbell

Physician and patient

Patient Perspectives, Pompe Columns

Pompe Patients Must Learn How to Deal With Trauma

By

Bruce Campbell

September 28, 2022

After 10 years of searching, fighting, testing, and many hours in hospitals, I was finally diagnosed with late-onset Pompe disease.

computer and insurance form

Patient Perspectives, Pompe Columns

Fighting Pompe Disease Also Means Fighting Insurance Companies

By

Bruce Campbell

September 12, 2022

According to my medical insurance, there is a possibility that one day I will wake up and my Pompe disease will be gone.

pompe disease symptoms

Patient Perspectives, Pompe Columns

Living With Pompe Means Listening to Your Body When It Talks

By

Bruce Campbell

August 31, 2022

In 2015, I was diagnosed with late-onset Pompe disease, and ever since I’ve been learning how to respond to my body’s messaging.

social media

Patient Perspectives, Pompe Columns

What Pompe Disease Patients Can Learn From Each Other

By

Bruce Campbell

August 22, 2022

I have always used my social media channels to reach out to other patients who also have Pompe disease.

pompe disease treatment

Patient Perspectives, Pompe Columns

What Others Don’t Know About Living With Pompe Disease

By

Bruce Campbell

August 2, 2022

There are more people out there affected by a rare disease than many would think.

Pompe columnist campbell

Patient Perspectives, Pompe Columns

How Paralysis and Pompe Disease Motivated Me to Live a Life Full of Fitness, Sports

By

Bruce Campbell

July 20, 2022

Rare disease columnist Bruce Campbell shares his journey from Guillain-Barré syndrome to Pompe disease.

stethoscope with map

Patient Perspectives, Pompe Columns

From Across the Globe: A Dialogue on Living With Pompe

By

Bruce Campbell

July 13, 2022

Treatment for Pompe disease can vary across the globe. Sharing experiences and tips among patients is good medicine.

pompe disease testing

Patient Perspectives, Pompe Columns

How I Turned a Pompe Diagnosis Into a Challenge I Would Not Walk Away From

By

Bruce Campbell

June 29, 2022

A diagnosis of Pompe disease can take years and patients suffer with pain and weakness in the meantime.

Stethoscope With Globe

Patient Perspectives, Pompe Columns

The Effectiveness of Pompe, Other Rare Disease Treatment Varies Greatly Across the Globe

By

Bruce Campbell

June 15, 2022

It is very clear to me that Pompe disease patients from overseas, especially America and the United Kingdom, have superior medical options.

Help, support, advice, guidance signpost

Patient Perspectives, Pompe Columns

Sharing Pompe Disease Lessons Learned Across the Globe

By

Bruce Campbell

June 1, 2022

I have spent a great deal of time trying to be an advocate for those with Pompe disease or another rare disease.

Next post in Pompe Columns

prepping at-home injection

Managing My Rare Disease Is a Life-Changing Daily Process Most Never See