All articles by Bruce Campbell
According to my medical insurance, there is a possibility that one day I will wake up and my Pompe disease will be gone.
In 2015, I was diagnosed with late-onset Pompe disease, and ever since I’ve been learning how to respond to my body’s messaging.
I have always used my social media channels to reach out to other patients who also have Pompe disease.
There are more people out there affected by a rare disease than many would think.
Rare disease columnist Bruce Campbell shares his journey from Guillain-Barré syndrome to Pompe disease.
Treatment for Pompe disease can vary across the globe. Sharing experiences and tips among patients is good medicine.
A diagnosis of Pompe disease can take years and patients suffer with pain and weakness in the meantime.
It is very clear to me that Pompe disease patients from overseas, especially America and the United Kingdom, have superior medical options.
I have spent a great deal of time trying to be an advocate for those with Pompe disease or another rare disease.